Symptoms
From ME/CFS Wiki
CHRONIC FATIGUE SYNDROME/FIBROMYALGIA SYMPTOM CHECKLIST (Katrina Berne's symptom checklist)
Please indicate on a scale of 1 to 10 the severity and frequency of each symptom, with 10 being the most severe and frequent. Use the past two months as a general guide. If you do not have the symptom, leave the space blank.
____ Fatigue, worsened by physical exertion or stress
____ Activity level decreased to less than 50% of pre-illness activity level
____ Recurrent flu-like illness
____ Sore throat
____ Hoarseness
____ Tender or swollen lymph nodes (glands), especially in neck & underarms
____ Shortness of breath with little or no exertion
____ Frequent sighing
____ Tremor or trembling
____ Severe nasal allergies (new or worsened)
____ Cough
____ Night sweats
____ Low-grade fevers
____ Feeling cold often
____ Feeling hot often
____ Cold extremities (hands and feet)
____ Low body temperature (below 97.6)
____ Low blood pressure (below 110/70)
____ Heart palpitations
____ Dryness of eyes and/or mouth
____ Increased thirst
____ Symptoms worsened by temperature changes
____ Symptoms worsened by air travel
____ Symptoms worsened by stress
PAIN
____ Headache
____ Tender points or trigger points
____ Muscle pain
____ Muscle twitching
____ Muscle weakness
____ Severe weakness of an arm or leg
___ ____ Full or partial paralysis of an arm or leg
____ Joint pain
____ TMJ syndrome
____ Chest pain
EYES AND VISION
____ Eye pain
____ Changes in visual acuity (frequent changes in ability to see well)
____ Difficulty with accommodation (switching focus from one thing to another)
____ Blind spots in vision
SENSITIVITIES
____ Sensitivities to medications (unable to tolerate a "normal" dosage)
____ Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hair sprays)
____ Sensitivities to foods
____ Alcohol intolerance
____ Alteration of taste, smell, and/or hearing
UROGENITAL
____ Frequent urination
____ Painful urination or bladder pain
____ Prostate pain
____ Impotence
____ Endometriosis
____ Worsening of premenstrual syndrome (PMS)
____ Decreased libido (sex drive)
GASTROINTESTINAL
____ Stomach ache; abdominal cramps
____ Nausea
____ Vomiting
____ Esophageal reflux (heartburn)
____ Frequent diarrhea
____ Frequent constipation
____ Bloating; intestinal gas
____ Decreased appetite
____ Increased appetite
____ Food cravings
____ Weight gain (_____ lbs)
____ Weight loss (_____ lbs)
OTHER ____ Rashes or sores
____ Eczema or psoriasis
____ Aphthous ulcers (canker sores)
____ Hair loss
____ Mitral valve prolapse
____ Cancer
____ Dental problems
____ Periodontal (gum) disease GENERAL NEUROLOGICAL
____ Lightheadedness; feeling"spaced out”
____ Inability to think clearly (“brain fog”)
____ Seizures
____ Seizure-like episodes
____ Syncope (fainting) or blackouts
____ Sensation that you might faint
____ Vertigo or dizziness
____ Numbness or tingling sensations
____ Tinnitus (ringing in one or both ears)
____ Photophobia (sensitivity to light)
____ Noise intolerance
EQUILIBRIUM/PERCEPTION
____ Feeling spatially disoriented
____ Dysequilibrium (balance difficulty)
____ Staggering gait (clumsy walking; bumping into things)
____ Dropping things frequently
____ Difficulty judging distances (e.g. when driving; placing objects on surfaces)
____ “Not quite seeing” what you are looking at
SLEEP
____ Hypersomnia (excessive sleeping)
____ Sleep disturbance: unrefreshing or non-restorative sleep
____ Sleep disturbance: difficulty falling asleep
____ Sleep disturbance: difficulty staying asleep (frequent awakenings)
____ Sleep disturbance: vivid or disturbing dreams or nightmares
____ Altered sleep/wake schedule (alertness/energy best late at night)
COGNITIVE
____ Difficulty with simple calculations (e.g., balancing checkbook)
____ Word-finding difficulty
____ Saying the wrong word
____ Difficulty expressing ideas in words
____ Difficulty moving your mouth to speak
____ Slowed speech
____ Stuttering; stammering
____ Impaired ability to concentrate
____ Easily distracted during a task
____ Difficulty paying attention
____ Difficulty following a conversation when background noise is present
____ Losing your train of thought in the middle of a sentence
____ Difficulty putting tasks or things in proper sequence
____ Losing track in the middle of a task (remembering what to do next)
____ Difficulty with short-term memory
____ Difficulty with long-term memory
____ Forgetting how to do routine things
____ Difficulty understanding what you read
____ Switching left and right
____ Transposition (reversal) of numbers, words and/or letters when you speak
____ Transposition (reversal) of numbers, words and/or letters when you write
____ Difficulty remembering names of objects
____ Difficulty remembering names of people
____ Difficulty recognizing faces
____ Poor judgment
____ Difficulty making decisions ____ Difficulty following simple written instructions
____ Difficulty following complicated written instructions
____ Difficulty following simple oral (spoken) instructions
____ Difficulty following complicated oral (spoken) instructions
____ Difficulty integrating information (putting ideas together to form a complete picture or concept)
____ Difficulty following directions while driving
____ Becoming lost in familiar locations when driving
____ Feeling too disoriented to drive
MOOD/EMOTIONS ____ Depressed mood
____ Suicidal thoughts
____ Suicide attempt(s)
____ Feeling worthless
____ Frequent crying
____ Feeling helpless and/or hopeless
____ Inability to enjoy previously enjoyed activities
____ Increased appetite
____ Decreased appetite
____ Anxiety or fear with no obvious cause
____ Panic attacks
____ Irritability; overreaction
____ Rage attacks: anger outbursts with little or no cause
____ Abrupt, unpredictable mood swings
____ Phobias (irrational fears)
____ Personality changes
© copyright 1999 and 2008 by Katrina H. Berne, Ph.D.,
The following is Katrina Berne's list of the most important symptoms.
GENERAL SYMPTOMS
Fatigue, worsened by physical exertion or stress
Activity level decreased to less than 50% of pre-illness activity level
Shortness of breath with little or no exertion
Recurrent flu-like illness (note: Some patients have flu-like symptoms only in the early stages, while others have frequent infections throughout the course of the illness.) Sore throat; hoarseness Tender or swollen lymph nodes (glands) Cough
Night sweats
Low-grade fevers
Severe nasal allergies (new or worsened)
Feeling cold often or feeling hot often
Cold extremities (hands and feet)
Low body temperature (below 97.6)
Low blood pressure (below 110/70)
Heart palpitations
Dryness of eyes and/or mouth
Increased thirst
Symptoms worsened by temperature changes
Symptoms worsened by stress (physical, emotional and/or cognitive)
PAIN
Headache
Tender points or trigger points
Muscle pain
Muscle weakness
Joint pain
Chest pain EYES AND VISION Eye pain
Changes in visual acuity (frequent changes in ability to see well)
Difficulty with accommodation (switching focus from one thing to another)
SENSITIVITIES Sensitivities to medications (unable to tolerate a "normal" dosage)
Sensitivities to odors (e.g., cleaning products, exhaust fumes, colognes, hairsprays)
Sensitivities to foods
Alcohol intolerance
Alteration of taste, smell, and/or hearing
UROGENITAL Frequent urination
Painful urination or bladder pain
Decreased libido (sex drive)
GASTROINTESTINAL Stomach ache; abdominal cramps
Nausea; vomiting
Esophageal reflux (heartburn)
Frequent diarrhea
Frequent constipation
Bloating; intestinal gas
Weight gain or loss (gain is more common)
OTHER Rashes or sores
Hair loss
Increased dental and periodontal problems
GENERAL NEUROLOGICAL
Lightheadedness; feeling"spaced out”
Inability to think clearly (“brain fog”)
Seizures or seizure-like episodes
Syncope (fainting) or blackouts or pre-syncope
Vertigo or dizziness
Numbness or tingling sensations
Tinnitus (ringing in one or both ears)
Photophobia (light sensitivity)
Noise intolerance
EQUILIBRIUM/PERCEPTION
Feeling spatially disoriented
Dysequilibrium (balance difficulty)
Clumsiness; frequently dropping things
Difficulty judging distances (e.g. when driving; placing objects on surfaces)
SLEEP Hypersomnia, often alternating with hyposomnia
Sleep disturbance:
difficulty falling asleep difficulty staying asleep (awakenings) unrefreshing or non-restorative sleep vivid or disturbing dreams or nightmares
Altered sleep/wake schedule (alertness/energy best late at night)
COGNITIVE Difficulty with simple calculations
Word-finding difficulty
Saying the wrong word
Impaired ability to concentrate Easily distracted during a task
Difficulty following a conversation when background noise is present
Losing your train of thought in the middle of a sentence
Difficulty putting tasks or things in sequence
Difficulty with short-term memory
Difficulty with long-term memory
Forgetting how to do routine things
Comprehension difficulty
Transposition (reversal) of numbers, words and/or letters when you speak or write
Difficulty remembering names of objects
Difficulty remembering names of people
Difficulty recognizing faces
Poor judgment
Difficulty making decisions
Difficulty following instructions:
simple or complicated
written or spoken
Difficulty integrating information (putting ideas together to form a concept)
Difficulty following directions while driving
Becoming lost in familiar locations when driving
Feeling too disoriented to drive
MOOD/EMOTIONS Depressed mood
Suicidal thoughts
Suicide attempt(s)
Feeling worthless
Frequent crying
Feeling helpless and/or hopeless
Appetite change: Increased or decreased
Anxiety with no obvious cause
Irritability; overreaction
Abrupt, unpredictable mood swings
© copyright 1999 by Katrina H. Berne, Ph.D., updated 2006
These two lists are posted here by permission of Katrina H. Berne, provided they are not distributed on a for-profit basis and that her copyright notice appears at the end.
