Support Groups

From ME/CFS Wiki

Contents 1 Australia 2 Canada 3 New Zealand 4 UK 5 US - State and Local

Australia

• ME/CFS/FM Support Association QLD Inc http://www.mecfsfmq.org.au

Canada

• FM-CFS Canada http://fm-cfs.ca/support.html

• Invisible Disabilities Association of Canada http://www.nsnet.org/idacan

New Zealand

• Associated New Zealand ME Society, PO Box 36-307, Northcote, Auckland, email info@anzmes.org.nz, tel +64 (09) 269 6374 http://www.anzmes.org.nz/ For the most recent information about local support groups, please see: http://www.anzmes.org.nz/support.htm

UK

• The ME Association, Box 8, Stanford-1e, Essex 2217 8EX, tel 01749 Advice line -1-4pm 44-0375-361013 http://www.meassociation.org.uk Advice line -1-4pm 44-0375-361013 For information on local groups in the UK, see: http://www.meassociation.org.uk/index.php?option=com_content&view=category&id=106&Itemid=204

• Welsh Association of ME and CFS Support http://www.wames.org.uk

US - State and Local

Alabama

• Auburn. East Alabama Support Group – Sharon_drakeford@eamc.org

• Birmingham. Birmingham Metro Support Group for FMS, CFIDS & Chronic Myofascial Pain – DianeEzell@aol.com

• Birmingham. SHE (Support and Hope through Education) – csims@bham.rr.com

• Oxford. FMS/MPS Support Group of Calhoun County – website: http://my.att.net/p/s/community.dll?ep=16&groupid=154610&ck=

Arkansas

• Bentonville. CFIDS Support Group of Bentonville – channel @nwa.quik.com

California

• Citrus Heights. California Capital CFIDS Assn. – website: http://www.ottem.org/ccca/events/index.htm

• Escondido. Chronic Illness Support Group – minpoway@cox.net

• Poway. CFIDS/FMS Information Support Group – barto@ucsd.edu

• Redding. Shasta CFIDS- website: http://69.10.163.110/cybermom/index.htm

• San Diego. San Diego CFS-FM Education & Support Group – cjcimage@netzero.com

Florida

• Miami. MiamiCoralGablesCFIDS-subscribe@yahoogroups.com

• Tampa. Bay Area CFIDS/FMS Support Group – wilfiacco@aol.com

• Tampa/Brandon. Suncoast Tampa/Brandon CFIDS/FMS/MCS Support Network, http://www.geocities.com/~marilynk/suncoast.htm

Georgia

• Kennesaw. CFS/ME Organization of Georgia. Website: http://www.cfog.us/

Illinois

• Chicago. Chicago CFS Association’s Parent Support Group. wndygale@quixnet.net

• Normal. Chronic Fatigue-Fibromyalgia Syndromes Support, 303 Belview Ave., Normal, IL 60450, tel 309-452-2477, email: acebowlersmom@aol.com

• Park Ridge. CFS Society of Illinois - cfssi@aol.com

Kansas

• NCFSFA-Topeka Chapter: National Chronic Fatigue Syndrome and Fibromyalgia Assoc., Contact information: Randy at 785-234-5932 or by email at: topekacfs@care2.com Celia Daniels, group leader

• Ellsworth. Augusta Area Fibro/Chronic Fatigue Support Group, 1155 Old Hwy 40 Ellsworth, KS. 67439 Phone: 785-472-3448, Email:dsurbanek@informatics.net Contact Person: Sharon Urbanek

Maine

• Augusta Area CFIDS/Fibro. Support Group, RR #1, Box 200 Windsor, ME 04363 Phone: 207-549-5029, Email: femelee@aol.com Contact Person: Fay S. Emery

• Old Orchard Beach. Turning Point Fibromyalgia/CFIDS Support Group, 25 Smithwhell Rd Unit One Old Orchard Beach, ME 04064 Phone: 207-934-6297, Email: kmegrant@maine.rr.com Contact Person: Karen Grant-Tolman

• Rochester. Seacoast Area Fibromyalgia/CFIDS/Chronic Pain Support Groups The Seacoast Chapter Support Group of the National CFIDS Foundation, FMI: Call Lisa Ball 603-332-0412

Maryland

• Baltimore. CFIDS Network of Baltimore Website: cfidsbaltmd@lycos.

Massachusetts

• North Berkshire Fibromyalgia / CFIDS Association, http://home.adelphia.net/~surok/fms

• Salisbury. Seacoast Area Fibromyalgia/CFIDS/Chronic Pain Support Groups, Contact John Labby at (978)462-5403

• Williamstown. Fibromyalgia/Chronic Fatigue Association of the Bukshires, 15 Orchard Lane Williamstown, MA 01267 Phone: 413-458-4319, Web Site: http://www.home.adelphia.net/surok/fms Contact Person: Marion Goodale

Michigan

• Bad Axe. New Beginnings - FM, CFIDS, LUPUS Support Group, Group Leader: Lynne Gucwa (517) 269-8697 Snail mail: Lynne Gucwa 2890 S. Thomas Rd Bad Axe, Michigan 48413, Group Co-Leader: Marilyn Luedke (517) 269-9396, Group Alternate: Carol Campbell (517) 269-6575

• Farmington Hills. H.O.P.E Helping Our Pain and Exhaustion, Inc., 32737 West 12 Mile Road Meeting City: Farmington Hills, Michigan, Leader Name: Sharon Ostalecki Leader Phone Number: 248-344-4063 Leader Email Address: smo23915@aol.com Web Site: http://hffcf.org

• Garden City. Metro Fibromyalgia and CFS Support Group: Merriman Rd. Baptist church. 2055 Merriman Rd. Garden City, MI 48135 Contact Lucy Rowley at 734-462-1768 or lucyrowley23@hotmail.com, Website: www.geocities.com/fibro_cfs_sup_group_gl/fibro.html

• Grand Rapids. Help, Hope & Positive Support Group – help4CFS@yahoo.com

Mississippi

• Brandon. CFIDS/M.E. Association of Mississippi. Inc. PO Box 243 Brandon, MS. 39043 Phone: 601-824-1108 Web Site: http//www.cfids-miss.org Contact Person: Rev. Kenneth D. Cook

Missouri

• Aurora. Aurora Fibromyalgia/Chronic Fatigue 18887 Lawrence 2175 Aurora, MO. 65605 Phone: 417-678-3580 Email: coraluxtr@hotmail.com Contact Person: Coralu Exter

Montana

• Great Falls. Great Falls Fibromyalgia Fighters & Chronic Fatigue Support Group, Contact coordinator Rita C. Severson at (406)727-6949

Nevada

• Reno. Northern Nevada FM/CFS Network – website: http://www.nnfcn.org/Welcome.html

New Jersey

• The New Jersey CFS Association – website: http://njcfsa.org/

• Bergen ME/CFS/FM Support Group, For info: please see www.njcfsa.org and click on “support Groups” for the latest information Mercer County Chronic Fatigue Support Group, For information, call the Hospital Community Health Education Department (609) 584-645

• Monmouth County Chronic Fatigue Support Group, The Center for Kids & Family Monmouth Medical Center 300 Second Ave., Long Branch, NJ, INFO: Call Helene Henkel at 732-923-6990

• Morris County Chronic Fatigue Support Group, INFO: Patty Strunck 973-335-7357 or pstrunck@optonline.net Peg Walk 973-765-0577 or Pegwalk@aol.com

• Ocean County Chronic Fatigue Support Group , support group leader Linda (732) 914-9020

• Pomona. Atlantic County Chronic Fatigue Support Group. NJCFSA Support Group, INFO: Betty McConnell 609-748-3559 E-Mail: bettymc28@comcast.net

• Rockland County NY CFIDS/FM/MCS Support Group, This group is located in New York, just over the border from New Jersey. Members come from both states, INFO: Enis Mehdi 845-368-4646 (M-F 11-4) or email message21@yahoo.com, Also: Lisa Cohen – jazztune@hotmail.com

• Union County Chronic Fatigue Support Group, For Phone Support, Call Ginny at (908) 688-8059 Warren County Chronic Fatigue Support Group, INFO: 908-859-6735

New York

• Herkhimer. Mohawk Valley FM/CFS Support Group – website: http://www.stetserfamily.com/fibro.htm

• Oneonta. Fibromyalgia CFS Support – website: http://www.freewebs.com/oneontafibro/calender.htm

• Pearl River. New York Support Network, Inc. New York Support Network, Inc. (NYSN), Email: info@nysn.org Web: http://nysn.org

• New York Support Network, Inc. P.O. Box 1085 Pearl River, N.Y. 10965 USA, Toll-free voicemail: (866) 841-9139 Extension 2458

• Rockland County. CFIDS/FMS Support Group of Rockland County – website: http://www.nysn.org/rockland/

North Carolina

• Charlotte. Charlotte Area CFIDS/ME/FMS Support Group – website: http://www.charlottecfs.org/

• Davidson. Fibromyalgia/CFS and Chronic Pain Support Group, e-mail johnniejago@bellsouth.net Phone: 704-947-7406, Contact: julie.fuselier@adajenkins.org Phone: 704-896-0471 ext 111 Julie Fuselier

• Winston-Salem. Winston-Salem CFS/FMS/MPS support Group – website: http://www.cfsfms.freeservers.com/

Ohio

• Brunswick. AWARE International,Association With A Responsibility to Educate, PO Box 605 Brunswick, Ohio 44212-0605 or call 330-225-4415

• Bucyrus. Fibromyalgia/Chronic Fatigue Support Group, ue Peters Telephone Number: 419-562-4775 Email Address: sgp75us@yahoo.com Address: First Church of the Nazarene, 2165 SR 4 S Bucyrus, OH 44820

• Warren. Trumbull Chronic Fatigue and/or Fibromyalgia Support Group 2811 N. Leavitt Rd. Warren, OH. 44485 Phone: 330-898-5642, Email: gramstalk@aol.com Contact Person: Kay Clapper

South Dakota

• Rapid City. Black Hills Support Group – website: http://www.bh-cfs-fms.myip.org/

Texas

• Dallas-Ft. Worth. CFS & FM Support Group of DFW – website: http://www.dfwcfids.org/index.shtml

Vermont

• The Vermont CFIDS Association, PO Box 3162, Burlington, VT 05408-3162, tel 1-800-296-1455, http://www.vtcfids.org/

Virginia

• Chantilly. The Northern Virginia CFS/ME/FMS/OI Support Group – website: http://www.cfsnova.com/

• Chester. Chester CFS/FMS support group, 4314 Wraywood Ave. Chester, VA 23831 Phone: 804-796-5190 Email: amie6109@aol.com, Contact Person: Amanda Wells

• Harrisonburg. FMS/CFS Support Group, For further information contact the facilitator, Francine Milstead, at (540) 433-4276

• Portsmouth. PORTSMOUTH, VIRGINIA FIBROMYALGIA/CFIDS SUPPORT GROUP, Mailing address: 3313 Opoho Crescent - Chesapeake, Va. 23321, Contact: Cindy @ 757-399-2426 or Karen @ 757-483-3613 Email: Karen@kgil526693@aol.com, Website: http://pages.ivillage.com/kgil526693/portsmouthva_fms_cfidssupportgroup/

• Northern Virginia. The Northern Virginia CFS/ME, FMS & OI Support Group, http://www.cfsnova.com/index.html

• Roanoke. CFS-VA CFIDS & FMS of Southwest Virginia – CTCwriter@msn.com

• Tidewater. Tidewater Chronic Pain & Chronic Illness Support Group – website: http://www.chronicouch.org/index.php

Washington

• Seattle. Seattle CFS – website: http://seattlecfs.webs.com/

West Virginia

• Clarksburg. Clarksburg Area CFIDS/FM Support Group, Rt. 3, Box 35 Salem, WV 26426 Phone: 304-782-3427 Contact Person: Joyce L. Stout

Wisconsin

• Wisconsin CFS Association – website: http://www.wicfs-me.org/wicfs1.htm#Support%20Group%20Leaders This website gives names and contact information for local support groups in Wisconsin.

• Barron County. Barron County Fibromyalgia/CFS/CFIDS/ME/Chronic Pain Support Group, Please call for more info: Lauri 715.651.9011 or Nancy 715-924-4920