Organizations for ME/CFS

From ME/CFS Wiki

Encyclopedia | Forum | Wiki Main

Support Groups

Contents 1 International 2 Australia 3 Canada 4 Europe 5 India 6 Ireland 7 New Zealand 8 South Africa 9 UK 10 USA 10.1 National 10.2 State and Local

International

• International Association for CFS/ME, 27 N Wacker Drive Suite 416, Chicago, IL 60606 USA tel: 847-258-7248, 847-579-0975 email: admin@iacfs.net http://www.aacfs.org/

Australia

• ACT ME/CFS Society, PO Box 717, Mawson, ACT 2607, tel 61-6-29-1984 http://www.mecfscanberra.org.au

• Alison Hunter Memorial Foundation http://fresh-guild.com/ahmfsite/index.html

• CFS Society of Western Australia, 92 Powell Street, Joondanna, Perth, Western Australia 6060, tel 61-09-483-6667

• Darwin ME/CFS Society

• ME/CFS Australia (Tasmania)

• ME/CFS Association of Australia Ltd http://www.mecfs.org.au

• ME/CFS Australia (SA) http://sacfs.asn.au

• ME/CFS Australia (Northern Territory) http://www.mecfs-vic.org.au/welcome-...hern-territory

• ME/CFS Society of Victoria , 23 Livingstone Close, Burwood, Victoria 3125, tel 61-3-888-8798, email cfs_society@3dis.com.au http://www.mecfs-nt.org.au

• ME/CFS Society of South Australia, PO Box 383, GPO, Adelaide, South Australia 5001, tel 61-8-373-2110

• ME/CFS/FM Support Association QLD Inc http://www.mecfsfmq.org.au

• ME/CFS Society of New South Wales (ME/CFS Society of NSW), PO box 449, Crows Nest, NSW 2065 tel 61-2-439-6026, email mesoc@zip.com.au

• ME/CFS Society of WA (Inc) http://www.mecfswa.org.au http://www.me-cfs.org.au

• ME/CFS Syndrome Society of Queensland, PO Box 938, Fortitude Valley, Qld 4006, tel 61-7-3832-9744 email gportr@gil.com.au

Canada

• FM-CFS Canada http://fm-cfs.ca/support.html

• M.E. Association, 246 Queen Street, Suite 400, Ottawa, Ontario K1P 5E4, tel 1-613-563-1565, email info@mecan.ca

• The National ME/FM Action Network, 3836 Carling Ave., Hwy 17B, Nepean, ON K2H 7V2 http://www.mefmaction.net

• Nightingale Research Foundation - 383 Danforth Avenue, Ottawa, Ontario K2A OE1, tel 1-613-728-9645 http://www.nightingale.ca/

• Invisible Disabilities Association of Canada http://www.nsnet.org/idacan

Europe

• European Society for ME (ESME) http://esme-eu.com/

• European ME Alliance http://www.euro-me.org

Belgium

• Ms. Alice Vertomme, Dorp 7, 3221 Nieuw Rode, tel 32 16 570983

Denmark

• Dansk ME Forening, Sønder Alle 5, st.,dør 3 , 9500 Hobro, Denmark, Phone: +45 29 37 05 59, email: information@dmef.dk http:// www.dmef.dk

• ME/CFS Foreningen (Danish ME/CFS Association), Raadhustorvet 1 2.sal DK-3520 Farum. Tel 45 4495 9700 Mon, Wed, Thu 10:00-14:00 and Thursday also 16:00-18:00 - email: mail@me-cfs.dk http://www.me-cfs.dk/Forside

France

• Association Francaise du Syndrome de Fatigue Chronique et de Fibromyalgie http://asso.nordnet.fr/cfs-spid/index.html

Germany

• Deutsche Fibromyalgie-Vereinigung (DFV) e.V., Postfach 1140, 74741 Seckach, Germany, tel: 00 62 92 / 92 87 58 or 00 62 92 / 92 87 61 email: fibromyalgie-fms@t-online.de http://www.fibromyalgie-fms.de/

• Foerderverein fuer CFS/CFIDS/ME-Erkrankte, Fatigatio e. V., Postfach 410261, D-53024 Bonn, tel 49 228 66-02-33, email fatigatio@t-online.de

• ME/CFS-Aktuell http://www.cfs-aktuell.de/

Italy

• C.F.S. Associazione Italia, Segreteria: Via Moimacco 20, 33100, Udine

• CFS Italia, email: amministrazione@cfsitalia.it http://www.cfsitalia.it/

• Sindrome de Stanchezza Chronica (Chronic Fatigue Syndrome) http://www.salutemed.it/cfs

Malta

• ME Sufferers Malta, PO Box 25, Pieta, PTA 1310, Malta http://www.mesufferersmalta.org/

Netherlands

• Chronisch Vermoeidheid Syndroom (ME Stichting), Robert Scottsstraat 4, 1056 AX Amsterdam, tel 31 (0) 20-6895162 (maandag, woensdag, vrijdag 10-12 uur) http://www.me-cvs-stichting.nl/

• ME Fonda, c/o Hanneke Los, Pres Kennedylaan 745, 1079 MR Amsterdam, tel 31 020 6445566, email mef@xs4all.nl

• ME Lobby, c/o Marc Fluks, de Bosch Kemperpad 136, 1054 PM Amsterdam, tel 31 020 618995, email melobby@dds.nl

Norway

• Norges Myalgisk Encefalopati Forening, Eikevien 96A, 1345 Osteras, tel 97-2-249879 - http://www.me-forening.no/index.php Many are following developments here: ME/CFS News Service from Rutts tankespinn blogger: http://merutt.wordpress.com/

Spain

• Fibromyalgia and Chronic Fatigue Syndrome Foundation, Dr Anna Cuscó - Executive President, Calle Joan Güell, 184 Local 27, 08028 Barcelona, Spain, tel: +34 93 419 0833 http://www.fundacionfatigo.org/

• Sindrome de Fatiga Cronica http://www.sfc-em-investigacion.com/index.php

Sweden

• Riksforeningen for ME-patienter (Swedish Assn of ME Patients), Box 1326 251 13 Helsingborg, tel 46 42-18-22-67 http://www.rme.nu/

Switzerland

• Verein CFS Schweiz, CH-8000 Zürich, Schweiz, Tel: +41 78 616 96 80 http://www.verein-cfs.ch

India

• ME India http://www.meindia.org/

Ireland

• Irish M.E./C.F.S. Association - for Information, Support & Research, PO Box 3075, Dublin 2 Tel 353-01-2350965 email info@irishmecfs.org

http://www.irishmecfs.org

• Irish M.E. Trust http://www.imet.ie./

New Zealand

• Associated New Zealand ME Society, PO Box 36-307, Northcote, Auckland, email info@anzmes.org.nz, tel +64 (09) 269 6374 http://www.anzmes.org.nz/ For the most recent information about local support groups, please see: http://www.anzmes.org.nz/support.htm

South Africa

• ME Association of South Africa, Arlene Vermaak, PO Box 1802, Umhlanga Rocks, 4320, South Africa, email: arl@telkomsa.net

UK

• Action for M.E., PO Box 1302, Wells, Somerset BA5 2 WE, tel 01749 67077 email info@afme.org.uk http://www.afme.org.uk

• 25% ME Group http://www.25megroup.org

• Association of Youth with ME (AYME), 5 Medland, Woughton Park, Milton Keynes MK6 3BH, tel 01908 691635 email ayme@btinternet.com http://www.ayme.org.uk

• CFS Research Foundation http://www.cfsrf.com

• Invest in ME http://www.investinme.org/

• MEActionUK http://www.meactionuk.org.uk

• The ME Association, Box 8, Stanford-1e, Essex 2217 8EX, tel 01749 Advice line -1-4pm 44-0375-361013 http://www.meassociation.org.uk Advice line -1-4pm 44-0375-361013 For information on local groups in the UK, see: http://www.meassociation.org.uk/index.php?option=com_content&view=category&id=106&Itemid=204

• The National ME Centre http://www.nmec.org.uk

• ME North East http://www.menortheast.org

• ME Research UK http://www.meresearch.org.uk/index.html

• MESH Nottingham http://meshnottm.limewebs.com/

• Welsh Association of ME and CFS Support http://www.wames.org.uk

USA

National

• Alliance for Neuroendocrineimmune Disorders - Organization for Research and Advocacy http://www.pandoranet.info/

• American Academy of Environmental Medicine, PO Box 16106, Denver, CO 80216, tel 1-303-622-9755

• CFIDS Association of America http://www.cfids.org

• CFIDS Report - http://www.cfidsreport.com/

• Chemical Injury Information Network, PO Box 301, White Sulphur Springs, MT 59645, contact: Cynthia Wilson, tel 1-406-547-2255

• Co-Cure ME/CFS and Fibromyalgia http://www.co-cure.org/

• Fibromyalgia Network, 5700 Stockdale Hwy, Suite 100, Bakersfield, CA 93309 info: 1-805-631-1950 from 10am-2pm Pacific

• Human Ecology Action League, PO Box 49126, Atlanta, GA 30359, tel 1-404-248-1898

• International Association for Chronic Fatigue Syndrome http://www.iacfsme.org

• MCS Referral and Resources, 508 Westgate Road, Baltimore, MD 221229-2343, tel 1-410-362-6400, email donnaya@rtk.net

• Medical Professionals with CFIDS, email LClovis428@aol.com

• M.E. Society of America http://www.cfids-cab.org/MESA/

• National Center for Environmental Health Strategies, 1100 Rural Avenue, Voorhes, NJ 08043, tel 1-609-429-5358

• National CFIDS Foundation http://www.ncf-net.org

• National CFS & Fibromyalgia Association, PO Box 18426, Kansas City, MO 64133, tel. 1-816-313-2000

• National Foundation of Chemical Hypersensitivities and Allergies, PO Box 222, Ophelia, VA 22530, tel 1-804-453-7538

• National Gulf War Resource Center, 3100 Main St. Suite 207, Kansas City, MO 64111, tel 1-816-960-0991, email ngwrc@gulfweb.org

• Organization for Fatigue and Fibromyalgia Education and Research http://www.offerutah.org/

• Patient R.E.S.C.I.N.D. - www.rescindinc.org

State and Local

Alabama

• Auburn. East Alabama Support Group – Sharon_drakeford@eamc.org

• Birmingham. Birmingham Metro Support Group for FMS, CFIDS & Chronic Myofascial Pain – DianeEzell@aol.com

• Birmingham. SHE (Support and Hope through Education) – csims@bham.rr.com

• Oxford. FMS/MPS Support Group of Calhoun County – website: http://my.att.net/p/s/community.dll?ep=16&groupid=154610&ck=

Arkansas

• Bentonville. CFIDS Support Group of Bentonville – channel @nwa.quik.com

California

• Citrus Heights. California Capital CFIDS Assn. – website: http://www.ottem.org/ccca/events/index.htm

• Escondido. Chronic Illness Support Group – minpoway@cox.net

• Mountain View. Mt View Support Group - cfsbayarea@yahoo.com

• Poway. CFIDS/FMS Information Support Group – barto@ucsd.edu

• Redding. Shasta CFIDS- website: http://69.10.163.110/cybermom/index.htm

• San Diego. San Diego CFS-FM Education & Support Group – cjcimage@netzero.com

Florida

• Miami. MiamiCoralGablesCFIDS-subscribe@yahoogroups.com

• Tampa. Bay Area CFIDS/FMS Support Group – wilfiacco@aol.com

• Tampa/Brandon. Suncoast Tampa/Brandon CFIDS/FMS/MCS Support Network, http://www.geocities.com/~marilynk/suncoast.htm

Georgia

• Kennesaw. CFS/ME Organization of Georgia. Website: http://www.cfog.us/

Illinois

• Chicago. Chicago CFS Association’s Parent Support Group. wndygale@quixnet.net

• Normal. Chronic Fatigue-Fibromyalgia Syndromes Support, 303 Belview Ave., Normal, IL 60450, tel 309-452-2477, email: acebowlersmom@aol.com

• Park Ridge. CFS Society of Illinois - cfssi@aol.com

Kansas

• NCFSFA-Topeka Chapter: National Chronic Fatigue Syndrome and Fibromyalgia Assoc., Contact information: Randy at 785-234-5932 or by email at: topekacfs@care2.com Celia Daniels, group leader

• Ellsworth. Augusta Area Fibro/Chronic Fatigue Support Group, 1155 Old Hwy 40 Ellsworth, KS. 67439 Phone: 785-472-3448, Email:dsurbanek@informatics.net Contact Person: Sharon Urbanek

Maine

• Augusta Area CFIDS/Fibro. Support Group, RR #1, Box 200 Windsor, ME 04363 Phone: 207-549-5029, Email: femelee@aol.com Contact Person: Fay S. Emery

• Old Orchard Beach. Turning Point Fibromyalgia/CFIDS Support Group, 25 Smithwhell Rd Unit One Old Orchard Beach, ME 04064 Phone: 207-934-6297, Email: kmegrant@maine.rr.com Contact Person: Karen Grant-Tolman

• Rochester. Seacoast Area Fibromyalgia/CFIDS/Chronic Pain Support Groups The Seacoast Chapter Support Group of the National CFIDS Foundation, FMI: Call Lisa Ball 603-332-0412

Maryland

• Baltimore. CFIDS Network of Baltimore Website: cfidsbaltmd@lycos.

Massachusetts

• North Berkshire Fibromyalgia / CFIDS Association, http://home.adelphia.net/~surok/fms

• Salisbury. Seacoast Area Fibromyalgia/CFIDS/Chronic Pain Support Groups, Contact John Labby at (978)462-5403

• Williamstown. Fibromyalgia/Chronic Fatigue Association of the Bukshires, 15 Orchard Lane Williamstown, MA 01267 Phone: 413-458-4319, Web Site: http://www.home.adelphia.net/surok/fms Contact Person: Marion Goodale

Michigan

• Bad Axe. New Beginnings - FM, CFIDS, LUPUS Support Group, Group Leader: Lynne Gucwa (517) 269-8697 Snail mail: Lynne Gucwa 2890 S. Thomas Rd Bad Axe, Michigan 48413, Group Co-Leader: Marilyn Luedke (517) 269-9396, Group Alternate: Carol Campbell (517) 269-6575

• Farmington Hills. H.O.P.E Helping Our Pain and Exhaustion, Inc., 32737 West 12 Mile Road Meeting City: Farmington Hills, Michigan, Leader Name: Sharon Ostalecki Leader Phone Number: 248-344-4063 Leader Email Address: smo23915@aol.com Web Site: http://hffcf.org

• Garden City. Metro Fibromyalgia and CFS Support Group: Merriman Rd. Baptist church. 2055 Merriman Rd. Garden City, MI 48135 Contact Lucy Rowley at 734-462-1768 or lucyrowley23@hotmail.com, Website: www.geocities.com/fibro_cfs_sup_group_gl/fibro.html

• Grand Rapids. Help, Hope & Positive Support Group – help4CFS@yahoo.com

Mississippi

• Brandon. CFIDS/M.E. Association of Mississippi. Inc. PO Box 243 Brandon, MS. 39043 Phone: 601-824-1108 http://www.cfids-miss.org Contact Person: Rev. Kenneth D. Cook

Missouri

• Aurora. Aurora Fibromyalgia/Chronic Fatigue 18887 Lawrence 2175 Aurora, MO. 65605 Phone: 417-678-3580 Email: coraluxtr@hotmail.com Contact Person: Coralu Exter

Montana

• Great Falls. Great Falls Fibromyalgia Fighters & Chronic Fatigue Support Group, Contact coordinator Rita C. Severson at (406)727-6949

Nevada

• Reno. Northern Nevada FM/CFS Network – website: http://www.nnfcn.org/Welcome.html

New Jersey

• The New Jersey CFS Association – website: http://njcfsa.org/

• Bergen ME/CFS/FM Support Group, For info: please see www.njcfsa.org and click on “support Groups” for the latest information Mercer County Chronic Fatigue Support Group, For information, call the Hospital Community Health Education Department (609) 584-645

• Monmouth County Chronic Fatigue Support Group, The Center for Kids & Family Monmouth Medical Center 300 Second Ave., Long Branch, NJ, INFO: Call Helene Henkel at 732-923-6990

• Morris County Chronic Fatigue Support Group, INFO: Patty Strunck 973-335-7357 or pstrunck@optonline.net Peg Walk 973-765-0577 or Pegwalk@aol.com

• Ocean County Chronic Fatigue Support Group , support group leader Linda (732) 914-9020

• Pomona. Atlantic County Chronic Fatigue Support Group. NJCFSA Support Group, INFO: Betty McConnell 609-748-3559 E-Mail: bettymc28@comcast.net

• Rockland County NY CFIDS/FM/MCS Support Group, This group is located in New York, just over the border from New Jersey. Members come from both states, INFO: Enis Mehdi 845-368-4646 (M-F 11-4) or email message21@yahoo.com, Also: Lisa Cohen – jazztune@hotmail.com

• Union County Chronic Fatigue Support Group, For Phone Support, Call Ginny at (908) 688-8059 Warren County Chronic Fatigue Support Group, INFO: 908-859-6735

New York

• Herkhimer. Mohawk Valley FM/CFS Support Group – website: http://www.stetserfamily.com/fibro.htm

• Oneonta. Fibromyalgia CFS Support – website: http://www.freewebs.com/oneontafibro/calender.htm

• Pearl River. New York Support Network, Inc. New York Support Network, Inc. (NYSN), Email: info@nysn.org Web: http://nysn.org

• New York Support Network, Inc. P.O. Box 1085 Pearl River, N.Y. 10965 USA, Toll-free voicemail: (866) 841-9139 Extension 2458

• Rockland County. CFIDS/FMS Support Group of Rockland County – website: http://www.nysn.org/rockland/

North Carolina

• Charlotte. Charlotte Area CFIDS/ME/FMS Support Group – website: http://www.charlottecfs.org/

• Davidson. Fibromyalgia/CFS and Chronic Pain Support Group, e-mail johnniejago@bellsouth.net Phone: 704-947-7406, Contact: julie.fuselier@adajenkins.org Phone: 704-896-0471 ext 111 Julie Fuselier

• Winston-Salem. Winston-Salem CFS/FMS/MPS support Group – website: http://www.cfsfms.freeservers.com/

Ohio

• Brunswick. AWARE International,Association With A Responsibility to Educate, PO Box 605 Brunswick, Ohio 44212-0605 or call 330-225-4415

• Bucyrus. Fibromyalgia/Chronic Fatigue Support Group, ue Peters Telephone Number: 419-562-4775 Email Address: sgp75us@yahoo.com Address: First Church of the Nazarene, 2165 SR 4 S Bucyrus, OH 44820

• Warren. Trumbull Chronic Fatigue and/or Fibromyalgia Support Group 2811 N. Leavitt Rd. Warren, OH. 44485 Phone: 330-898-5642, Email: gramstalk@aol.com Contact Person: Kay Clapper

South Dakota

• Rapid City. Black Hills Support Group – website: http://www.bh-cfs-fms.myip.org/

Texas

• Dallas-Ft. Worth. CFS & FM Support Group of DFW – website: http://www.dfwcfids.org/index.shtml

Vermont

• The Vermont CFIDS Association, PO Box 3162, Burlington, VT 05408-3162, tel 1-800-296-1455, http://www.vtcfids.org/

Virginia

• Chantilly. The Northern Virginia CFS/ME/FMS/OI Support Group – website: http://www.cfsnova.com/

• Chester. Chester CFS/FMS support group, 4314 Wraywood Ave. Chester, VA 23831 Phone: 804-796-5190 Email: amie6109@aol.com, Contact Person: Amanda Wells

• Harrisonburg. FMS/CFS Support Group, For further information contact the facilitator, Francine Milstead, at (540) 433-4276

• Portsmouth. PORTSMOUTH, VIRGINIA FIBROMYALGIA/CFIDS SUPPORT GROUP, Mailing address: 3313 Opoho Crescent - Chesapeake, Va. 23321, Contact: Cindy @ 757-399-2426 or Karen @ 757-483-3613 Email: Karen@kgil526693@aol.com, Website: http://pages.ivillage.com/kgil526693/portsmouthva_fms_cfidssupportgroup/

• Northern Virginia. The Northern Virginia CFS/ME, FMS & OI Support Group, http://www.cfsnova.com/index.html

• Roanoke. CFS-VA CFIDS & FMS of Southwest Virginia – CTCwriter@msn.com

• Tidewater. Tidewater Chronic Pain & Chronic Illness Support Group – website: http://www.chronicouch.org/index.php

Washington

• Seattle. Seattle CFS – website: http://seattlecfs.webs.com/

West Virginia

• Clarksburg. Clarksburg Area CFIDS/FM Support Group, Rt. 3, Box 35 Salem, WV 26426 Phone: 304-782-3427 Contact Person: Joyce L. Stout

Wisconsin

• Wisconsin CFS Association – website: http://www.wicfs-me.org/wicfs1.htm#Support%20Group%20Leaders This website gives names and contact information for local support groups in Wisconsin.

• Barron County. Barron County Fibromyalgia/CFS/CFIDS/ME/Chronic Pain Support Group, Please call for more info: Lauri 715.651.9011 or Nancy 715-924-4920