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This is the clincher in my decision about the FLU shot for this year -- time to opt out, I think.  I have been getting the seasonal FLU shot for 19 years . . . because I did get the BAD FLU--doc said--get flu shot now!!  THAT is a LOT of flu shots--I hope I will not be qualifying for Alzheimer's as a result !!  THAT said -- something IS driving the pandemic of Alzheimer's and that is for sure!!!

Because of the restrictions and limitations we PWME/CFS face--I will ask my doc for a prescription for Tamiflu to have on hand--shd I develop the flu--as getting to the doc won't be an option and within the specified time frame even more restrictive.

PHARMA and vaccine makers -- coming up HIGHLY UNtrustworthy -- along with HHS--NIH--CDC!!  They do not even consider 'Do NO Harm.'  They don't care either!  It's all about corporate greed.  Dedicated doctors DO care!!
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http://medicalkidnap.com/2014/10/22/4-month-old-texas-baby-seized-from-parents-in-medical-dispute/

October 22, 2014   

4 Month Old Texas Baby Seized from Parents in Medical Dispute
 October 22, 2014
4 Month Old Texas Baby Seized from Parents in Medical Dispute
 
Terri LaPoint

 Health Impact News

The Texas mother of a four-month old baby girl writes, “I just want her back home in my arms and love and kiss on her! To hold her and never let go!” But it has been a month now since little Kathryn Blalock was literally taken out of her mother’s arms by CPS and the UMC Children’s Hospital in Lubbock, Texas, in what appears to be another medical kidnapping.
Lorie, the mother of Kathryn,  feels as though she is living a nightmare, amidst contradictory information and diagnoses from the doctors. Despite doing everything she could to follow all of the doctors’ instructions, her baby was abruptly removed from her custody and is now in medical foster care away from the family who loves her.

 Baby Kathryn’s Story Kathryn was born on June 9, 2014, with a rare genetic condition called Pierre Robin Sequence. She also has a cleft soft palate and feeding problems that go along with it. Originally, Kathryn was diagnosed with craniostenosis, an abnormality in the fusion of the skull plates. That diagnosis was later thrown out, but now the doctors have gone back to the original diagnosis.

She has experienced a number of medical problems in her short life, but despite the confusion, her mother has always followed the doctors’ directives, trusting that they knew best. Now that system has turned on her and her daughter.

Lorie sought to give her baby the best start in life that she could, paying attention to good nutrition and prenatal care with a licensed midwife. Even though she had planned for a natural birth, Lorie felt intuitively that something was wrong at the end. Though continual fetal monitoring at the hospital showed variable decels for six hours, with the heart rate going up to 180 with each contraction, the staff assured her that everything was fine. Lorie’s maternal instincts proved correct. During the emergency c-section that she readily agreed to, they found that the cord was wrapped around her baby’s neck twice and was causing complications.

 Unwanted Vaccine Because of her own history of reactions to certain vaccines with convulsions and an 18 hour period of unresponsiveness, Lorie requested that the only shot that her newborn be given would be the Vitamin K shot. Her concern was ignored, and Kathryn was given the Hepatitis B vaccine in the hospital.

From the beginning, Kathryn was having difficulty feeding, which is very common for babies with cleft palates. Lorie sought help from the hospital’s nurses and lactation consultant. After that, the baby latched on immediately, but had a weak suck. The nurses said it was nothing, blaming it on the anesthesia. It was the lactation consultant who figured out that Kathryn had a cleft soft palate.

 Seizures and Medical Problems In late July, Kathryn began to have seizures.

On September 4, baby Kathryn had an ALTE (acute life threatening event) where she stopped breathing. Her family took her to the local hospital, where they airlifted her to UMC in Lubbock. That is where mother and baby would spend the next two weeks. It was determined that they would do surgery to insert a gbutton in order to insert a long-term feeding tube into her stomach. It would remain until she could have surgery to correct the cleft palate.

 Baby Kathryn’s Story Kathryn was born on June 9, 2014, with a rare genetic condition called Pierre Robin Sequence. She also has a cleft soft palate and feeding problems that go along with it. Originally, Kathryn was diagnosed with craniostenosis, an abnormality in the fusion of the skull plates. That diagnosis was later thrown out, but now the doctors have gone back to the original diagnosis.

She has experienced a number of medical problems in her short life, but despite the confusion, her mother has always followed the doctors’ directives, trusting that they knew best. Now that system has turned on her and her daughter.

Lorie sought to give her baby the best start in life that she could, paying attention to good nutrition and prenatal care with a licensed midwife. Even though she had planned for a natural birth, Lorie felt intuitively that something was wrong at the end. Though continual fetal monitoring at the hospital showed variable decels for six hours, with the heart rate going up to 180 with each contraction, the staff assured her that everything was fine. Lorie’s maternal instincts proved correct. During the emergency c-section that she readily agreed to, they found that the cord was wrapped around her baby’s neck twice and was causing complications.
 
 
 

4 month old Kathryn Blalock
 
  The Texas mother of a four-month old baby girl writes, “I just want her back home in my arms and love and kiss on her! To hold her and never let go!” But it has been a month now since little Kathryn Blalock was literally taken out of her mother’s arms by CPS and the UMC Children’s Hospital in Lubbock, Texas, in what appears to be another medical kidnapping.

Lorie, the mother of Kathryn,  feels as though she is living a nightmare, amidst contradictory information and diagnoses from the doctors. Despite doing everything she could to follow all of the doctors’ instructions, her baby was abruptly removed from her custody and is now in medical foster care away from the family who loves her.


Baby Kathryn with mom and siblings at home


 Baby Kathryn’s Story


Kathryn was born on June 9, 2014, with a rare genetic condition called Pierre Robin Sequence. She also has a cleft soft palate and feeding problems that go along with it. Originally, Kathryn was diagnosed with craniostenosis, an abnormality in the fusion of the skull plates. That diagnosis was later thrown out, but now the doctors have gone back to the original diagnosis.

She has experienced a number of medical problems in her short life, but despite the confusion, her mother has always followed the doctors’ directives, trusting that they knew best. Now that system has turned on her and her daughter.

Lorie sought to give her baby the best start in life that she could, paying attention to good nutrition and prenatal care with a licensed midwife. Even though she had planned for a natural birth, Lorie felt intuitively that something was wrong at the end. Though continual fetal monitoring at the hospital showed variable decels for six hours, with the heart rate going up to 180 with each contraction, the staff assured her that everything was fine. Lorie’s maternal instincts proved correct. During the emergency c-section that she readily agreed to, they found that the cord was wrapped around her baby’s neck twice and was causing complications.

 Unwanted Vaccine Because of her own history of reactions to certain vaccines with convulsions and an 18 hour period of unresponsiveness, Lorie requested that the only shot that her newborn be given would be the Vitamin K shot. Her concern was ignored, and Kathryn was given the Hepatitis B vaccine in the hospital.

From the beginning, Kathryn was having difficulty feeding, which is very common for babies with cleft palates. Lorie sought help from the hospital’s nurses and lactation consultant. After that, the baby latched on immediately, but had a weak suck. The nurses said it was nothing, blaming it on the anesthesia. It was the lactation consultant who figured out that Kathryn had a cleft soft palate.

 Seizures and Medical Problems


In late July, Kathryn began to have seizures.

On September 4, baby Kathryn had an ALTE (acute life threatening event) where she stopped breathing. Her family took her to the local hospital, where they airlifted her to UMC in Lubbock. That is where mother and baby would spend the next two weeks. It was determined that they would do surgery to insert a gbutton in order to insert a long-term feeding tube into her stomach. It would remain until she could have surgery to correct the cleft palate.


Kathryn in the hospital with a feeding tube

 The surgery went well, but by the 15th, Kathryn began urinating more than she was taking in. She underwent a number of tests. On the 17th, she threw up 5 times in a 15 minute period. Just before this, her fortified breastmilk had been switched to formula. After more tests were performed, Kathryn was released to go home with her mother.

During the entire two week hospital stay, pictures of her show a happy baby. Her mother reports episodes of baby giggles, even in her sleep. With all the surgeries, and tests, meds, and wires, Kathryn was a happy and secure little girl, as can be seen in numerous pictures. Her mother spent the entire two weeks by her side, holding and nurturing her, only leaving the room for brief trips to the cafeteria.

Though they couldn’t figure out the cause of the seizures, it appeared that the medications were getting the seizures under control. The nurses showed Lorie how to give Kathryn the proper dosage of medications via the gbutton. They went home on Thursday, September 18, after a two-week ordeal.

 Back to Hospital – CPS Steps In and Takes Custody It was short-lived. Only two days later, on the 20th, Kathryn again began having seizures, and was rushed to UMC.

The next day, CPS and the staff at UMC informed Lorie that they were taking custody of Kathryn over the medical condition. She was only out of the hospital’s care for two days between September 4th and the 21st. Her mother had to beg to be able to at least say goodbye.

Lorie was stunned and devastated as they literally took baby Kathryn out of her arms, accusing her of not giving her the medications. She insists that she followed their instructions on how to give it to a T, detailing every step of the complicated process to me.  The basis for the accusation was simply a test that showed that the level of phenobarbital in her bloodstream was 9.5 mg, but it should have been at least 10 mg.

Since that time, Lorie reports that she has learned that seizures lower the level of phenobarbital in the bloodstream, so logically it would go down after the three seizures that day. She also reports that a nurse was supposed to come to her home each day for Kathryn, but “the nurse called me and said that she could have been here, but CPS told her not to.”

Had she come, she would have witnessed the giving of the medications. The nurse could been able to correct any mistakes that she was making if she saw any. Other non-medical people were witnesses that Lorie did what the hospital told her to do, but CPS did not appear interested in hearing from them.

Lori has twins who are almost two, born prematurely, who are generally healthy. One of them takes albuterol as needed. There has never been any question that she has given medications appropriately to the twins. Lorie cannot understand why she is being accused of such now, when she followed all of the hospital’s instructions for her baby’s care.

 CPS and Texas Attempt to Terminate All Parental Rights



Baby Kathryn now in hospital care and separated from her mother

 The paperwork describing the case for removing baby Kathryn from her mother’s care is filled with contradictions, discrepancies, and according to Lorie, statements that simply are not true. On October 15, the state attempted to terminate all parental rights, but the Blalock’s attorney was able to keep that from going through. But, the battle is far from over.

Lorie and the rest of the family have only been permitted to see Kathryn twice in the month since the state took over custody. The last time was two weeks ago. For a four month old baby, two weeks is an eternity without mom. There is no way for her to comprehend what has happened to her.

Despite all the tests and procedures, when mom was with her, as moms are supposed to be, Kathryn was secure and happy. It’s clear from the photographs.

A Family’s Nightmare

Then, there are heartbreaking photos of baby Kathryn from the family’s first visit, an entire week after CPS kidnapped Kathryn. She is obviously different. She is distant, and despondent. She doesn’t make eye contact. The contrast between the pictures before and after she is taken is stark, and jarring. When babies aren’t with their mommies, it is devastating to them. No government official or hospital personnel can possibly substitute.

 
Kathryn with her mom after CPS took custody.  No longer a happy baby.



On Monday, Lorie poured out her heart in a heart-rending post on the family’s Facebook Page. All she wants to do is hold her baby and have her back in her arms, where she belongs


Quote
“Can’t sleep. Everyone is asleep but me and all I can think about is my baby girl. Just have this gut wrenching heart twisting feeling something is wrong….. don’t know why but I just do. And I know she is crying extremely bad I can feel it in my breasts…. still every cry and severity of cry I feel… and feel milk fill up…. Even though there is very little milk left……
“Miss her and love her so much and would do anything to comfort her and hold her skin to skin on my chest and let her listen and relax to my scent my touch the sound of my heartbeat!!!!
“Please pray that she is okay! That God keeps his protecting arms wrapped around her and heals her!!!!!”


 It has been a month since baby Kathryn has been taken from her home. Babies are fairly flexible in that home is simply where mommy is. Psychologists tell us that the place where babies want to be is skin-to-skin with mom. When they are separated, the baby feels abandoned. Even Lorie’s 2 year old twins look for their sister Kathryn and cry since she is gone. They don’t understand this injustice either.

It is time for the public to be aware of the story of baby Kathryn Blalock who has been medically kidnapped from loving parents and siblings. Help us get this story out there.
 Lorie Blalock has set up social media accounts to keep people updated. The Facebook page is “Bring Baby Kathryn Home.” Twitter is @bringkathome

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Treatments / Re: Amitriptyline
« Last post by Loulou on Yesterday at 07:01:23 AM »
Yes Flopsy, I took it for pain but it's done zilch and I can honestly say I gave it a fair go. It wasn't for depression or bed wetting which is what it states it's use is for in my leaflet - neither of which are the case !
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http://www.realfarmacy.com/johns-hopkins-scientist-reveals-shocking-report-flu-vaccines/


 Johns Hopkins Scientist Reveals Shocking Report on Flu Vaccines

Oct 17

Johns Hopkins scientist has issued a blistering report on influenza vaccines in the British Medical Journal (BMJ). Peter Doshi, Ph.D., charges that although the vaccines are being pushed on the public in unprecedented numbers, they are less effective and cause more side effects than alleged by the Centers for Disease Control and Prevention (CDC). Further, says Doshi, the studies that underlie the CDC’s policy of encouraging most people to get a yearly flu shot are often low quality studies that do not substantiate the official claims.
 
Promoting influenza vaccines is one of the most visible and aggressive public health policies in the United States, says Doshi of the Johns Hopkins School of Medicine. Drug companies and public officials press for widespread vaccination each fall, offering vaccinations in drugstores and supermarkets. The results have been phenomenal. Only 20 years ago, 32 million doses of influenza vaccine were available in the United States on an annual basis. Today, the total has skyrocketed to 135 million doses.
“The vaccine may be less beneficial and less safe than has been claimed, and the threat of influenza seems to be overstated,” Doshi says. Mandatory vaccination polices have been enacted, often in healthcare facilities, forcing some people to take the vaccine under threat of losing their jobs.
 
 The main assertion of the CDC that fuels the push for flu vaccines each year is that influenza comes with a risk of serious complications which can cause death, especially in senior citizens and those suffering from chronic illnesses. That’s not the case, said Doshi.

When read carefully, the CDC acknowledges that studies finding any perceived reduction in death rates may be due to the “healthy-user effect” — the tendency for healthier people to be vaccinated more than less-healthy people. The only randomized trial of influenza vaccine in older people found no decrease in deaths. “This means that influenza vaccines are approved for use in older people despite any clinical trials demonstrating a reduction in serious outcomes,” says Doshi
Even when the vaccine is closely matched to the type of influenza that’s prevalent, which doesn’t happen every year, randomized, controlled trials of healthy adults found that vaccinating between 33 and 100 people resulted in one less case of influenza. In addition, says Doshi, no evidence exists to show that this reduction in the risk of influenza for a specific population — here in the United States, among healthy adults, for example — extrapolates into any reduced risk of serious complications from influenza, such as hospitalizations or deaths, among seniors.

 “For most people, and possibly most doctors, officials need only claim that vaccines save lives, and it is assumed there must be solid research behind it,” says Doshi. Unfortunately, that’s not the case, he says.
   
 Although the CDC  implies that flu vaccines are safe and there’s no need to weigh benefits against risk, Doshi disagrees. He points to an Australian study that found one in every 110 children under the age of five had convulsions following vaccinations in 2009 for H1N1 influenza. Additional investigations found that the H1N1 vaccine was also associated with a spike in cases of narcolepsy among adolescents.
 
 Doshi’s concerns echo those of Dr. Russell Blaylock, a neurosurgeon and author of “The Blaylock Wellness Report” who has deep concerns over the safety and efficacy of the flu vaccine.
  Not only is the vaccine not safe, Dr. Blaylock tells Newsmax Health, it doesn’t even work. “The vaccine is completely worthless, and the government knows it,” he says. “There are three reasons the government tells the elderly why they should get flu shots: secondary pneumonia, hospitalization, and death. Yet a study by the Cochrane group studied hundreds of thousands of people and found it offered zero protection for those three things in the general community. It offered people in nursing homes some immunity against the flu — at best one-third — but that was only if they picked the right vaccine.”

 A study released in February found that the flu shot was only 9 percent effective in protecting seniors against the 2012-2013 season’s most virulent influenza bug.
 
 What’s even worse is that small children who are given the flu vaccine get no protection from the disease. “The government also says that every baby over the age of six months should have a vaccine, and they know it contains a dose of mercury that is toxic to the brain,” says Dr. Blaylock. “They also know the studies have shown that the flu vaccine has zero — zero — effectiveness in children under five.”

 For most people, says Dr. Blaylock, flu vaccines don’t prevent the flu but actually increase the odds of getting it. The mercury contained in vaccines is such a strong immune depressant that a flu shot suppresses immunity for several weeks. “This makes people highly susceptible to catching the flu,” he says. “They may even think the vaccine gave them the flu, but that’s not true — it depressed their immune system and then they caught the flu.”

 Mercury overstimulates the brain for several years, says Dr. Blaylock, and that activation is the cause of Alzheimer’s and other degenerative diseases. One study found that those who get the flu vaccine for three to five years increase their risk of Alzheimer’s disease 10-fold.

Doshi asserts that influenza is a case of “disease mongering” in an effort to expand markets. He points to the fact that deaths from flu declined sharply during the middle of the 20th century, long before the huge vaccine campaigns that kicked off the 21st century. 
 Why do drug companies push the flu vaccine? “It’s all about money,” says Dr. Blaylock. “Vaccines are a pharmaceutical company’s dream. They have a product that both the government and the media will help them sell, and since vaccines are protected, they can’t be sued if anyone has a complication.”
 
 Doshi’s article “is a breath of fresh air,” says Dr. Blaylock. “This article exposes in well-defined and articulate terms what has been known for a long time — the flu vaccine promotion is a fraud.
 
 “Here’s the bottom line,” says Dr. Blaylock. “The vast number of people who get the flu vaccine aren’t going to get any benefit, but they get all of the risks and complications.” 
 Source: newsmaxhealth.com, The British Medical Journal

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http://www.digitaljournal.com/pr/2274304


The Institute for Advanced Medical Research Launches Fibromyalgia Study


Alpharetta facility offers support for those with fibromyalgia


 ALPHARETTA, Ga. -- Oct. 21, 2014 -- PRZen -- Today the Institute for Advanced Medical Research announced that they will launch a new clinical trial for fibromyalgia on November 1, 2014.  The pivotal phase 3 trial will test the efficacy of a new compound.

Fibromyalgia (FM) can best be described as a chronic pain state caused by excitation of nerves carrying pain signals to the brain.  It is a highly complex disorder with a variety of symptoms that come and go, making it difficult to identify, diagnose and treat.  The disease also includes specific pain trigger points useful in making a clear diagnosis.  Experts predict that approximately 10 million Americans have this disorder, most of them women.

In addition to the chronic, debilitating pain of fibromyalgia, many of the symptoms of fibromyalgia are similar to other medical conditions and actually often co-exists with others including severe fatigue, insomnia, muscle knots, cramping and weakness, brain fog and IBS.

“Currently, there are only three drugs approved for treating fibromyalgia and much needs to be done in the area of research.  There is no cure for fibromyalgia and today treatment is focused on the management of the chronic pain; because of the chronic pain issues, many people with fibromyalgia become withdrawn from family and friends and even become depressed,” offered Angelo Sambunaris, M.D., Founder and President of the Institute.  “This study provides an in-depth diagnostic evaluation and support from an expert at no cost to the participant, providing benefits for both the individual and the advancement of medicine.”

To learn more or schedule an evaluation, please call 770-817-9200, or visit IAMResearch.org.

About the Institute for Advanced Medical Research

The Institute for Advanced Medical Research empowers individuals struggling with neuropsychological conditions to actively participate in their treatment. By educating and informing patients and their families, the team offers them a renewed sense of purpose. Rather than simply being victims of a disease, study participants become health care heroes, creating a personal legacy of advancing medical science.

Adhering to the highest standards of quality and strict ethical principles of medical research, the Institute employs a patient-centered approach that balances a commitment to safety with highly personalized care. Since 1991, the Institute has helped more than 3,000 individuals improve their quality of life while ensuring that millions more can benefit from access to innovative medical treatments. For more information, visit the Institute for Advanced Medical Research website at IAMResearch.org, or call 770-817-9200.

Media Contact
Melissa Thomas-Dubois
4045121217

Source: The Institute for Advanced Medical Research
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http://bwog.com/2014/10/21/bwoglines-thats-crazy-bro-edition/

Bwoglines: “That’s Crazy, Bro” Edition

 

He’s literally screaming “That’s crazy, bro!”


Dr. W. Ian Lipkin, a professor at Columbia’s Mailman School of Health, said about a group undergraduates who created a protective suit for Ebola patients as part of Lipkin’s design challenge, “But the undergraduates! People talk about ennui and apathy in undergraduates? I don’t see it. They came up with some fantastic stuff.” More succinctly, Columbia undergrads are crazy smart, bro. (The New Yorker)
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Advocacy News and Issues / Will comments to AHRQ website be publicly posted?
« Last post by Patricia on Yesterday at 02:57:17 AM »
The AHRQ website said that all comments will be publicly posted; but the way I read this, they have until three months after the final report is released to post the comments.

As I have stated before, we know that NIH will count these comments as part of patient participation and it will allow them to pretend that patients approve of the process because they participated.  And, if they do post the comments publicly, they can wait until three months after the final report is released.  At that point, who will care what patients' email comments say?  The report will be history, and ME patients will be sentenced to another 30 years of abuse and neglect with the help of this AHRQ report.

Quote
The AHRQ Effective Health Care (EHC) Program supports and is committed to the transparency of its public review process.  Reviewers are not required to provide their name or affiliation in order to submit comments.

For draft key questions, comments will be taken into consideration and may potentially result in modifications to the final key questions; however, individual comments will not be identified or posted, except in summary form.

For draft reports, comments will be publicly posted on the EHC Program Web site within 3 months after the associated final report is posted on this Web site.  Each review comment on the draft report will be listed with the reviewer’s name and affiliation, if such information is provided.  Please note that if reviewers include identifiable personal health information, it will be redacted.  The report authors’ responses to the comments (the “disposition of comments”) will be posted on the same Web page as the associated final report.

Acceptance of Disclosure Policy (Required for comment acceptance.)

  I have read and understand the disclosure notice in the preceding paragraph and acknowledge that if I have made comments on a draft report, my comments will be posted on the EHC Program Web site with my name and affiliation, if submitted, within 3 months after this project’s final report is posted on this Web site.


Here is the confirmation email they sent to people who posted comments on their website.


Quote
Dear ...:

Thank you for submitting comments for the topic, Diagnosis and Treatment of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) . We greatly appreciate the time you have dedicated to improving the Effective Health Care Program research and reports and thank you for your contribution.

The comments you submitted will be reviewed and may be incorporated as appropriate into the final report; however, we cannot guarantee that all comments submitted will be included. Additionally, the Effective Health Care Program may use the comments you submitted to guide future research. If you provided personal information, you may be contacted if we have questions about your submission.

If you haven't already done so, we encourage you to join the e-mail list to receive email updates from the Effective Health Care Program. Submit the form on the page to be notified when items of interest become available for review or public comment. You may choose to be notified about one or multiple conditions and/or products.

Thank you,

The Effective Health Care Program
http://effectivehealthcare.ahrq.gov
8
If anyone is afraid to post here because of the threat of retaliation by Phoenix Rising moderators, you are welcome to send your information to me and I will post it here for you without including your name or identifying information.  It is just really sad that these people are doing this to ME patients.

You are welcome to message me on facebook, Patricia Carter, or to email me at Wildaisyfl@yahoo.com
9
Advocacy News and Issues / Re: Cards for Karina
« Last post by Ess on Yesterday at 01:56:46 AM »
My family put my cards in the mail today for Karina--sent to both addresses too.  The DISregard and human cruelty waged against Karina and her family is BARBARIC!

Why in the world is this allowed -- AND allowed to continue ?   >:( >:( >:(
10
Advocacy News and Issues / Merryn is fighting for her life with severe M.E.
« Last post by Patricia on Yesterday at 01:49:18 AM »
https://www.facebook.com/ShareAStarCharity

Update from Clare (Merryn's mum)   Hello everyone, just a quick update. The TPN was started again through the Central line last night so it's a matter of waiting and keeping our fingers crossed for no more blood clots. Merryns had quite a lot of pain in her ribs and her PEG site is weeping again so they've taken a swab and put anti bacterial dressings on it.

 We'd both like to say a big thank you for all the cards and gifts that you've sent, thank you so much for taking the time and thought to show such kindness, it really does mean such a lot.
 Thank you also to the wonderful Jessica Shareastar Taylor and Share A Star who has given so much support and sent a bag full of goodies, a picture of this is on the Share A Star page and Merryn was most happy to hear it has got more views than Orlando Bloom lol! Still smiling, still fighting and most thankful for your amazing support xxxI wanted to show you what we get up to with the money you raise for us. This is our Merryn Star, she is in hospital with a life threatening form of severe M.E and many blood clots. They've even had to put a central line in her neck and she's nowhere nearer to coming home. We provide emotional support for her and her mum, plus a Superstar Surprise set of gifts, plus a balloon and a card appeal to try and keep this brave superstar smiling. Please send your best wishes to our Merryn Star and we would like to thank you for all the support you provide through fundraising, and just following us. You are changing lives 󾭟 height=429
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