Advocacy News and Issues / Re: THE CONNECTION BETWEEN FRAUD IN CFS & LYME DISEASE RESEARCH-Lynn Shepler, MD JD« Last post by Ess-OriG on Today at 06:19:19 AM »
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T h i c k e n s.
T h i c k e n s.
Please sign! 6177 signatures so far!
Stop the HHS-IOM and Accept the CCC Definition https://secure.avaaz.org/en/petition/Stop_the_HHSIOM_contract_and_accept_the_CCC_definition_of_ME/
QuoteEverybody's worked/working it all out.
Satisfy the patient population.
Throw them a big study with big names.
Show them 'we take you seriously.'
Hell,know that the shrinks will pounce on it but leave it be to show that 'we're the ones defending you/trying to stand up for you.we're doing something see!! We're really helping you in spite of the attacks on us and you!'QuoteYeah right ! No thanksQuoteKeep it biological. IOM it as much as possible.
Policy.Toe the line.Comb our hair neat,smart,n suit n tie it all up.
Well now, if they think they've dressed us all up they better know we have multiple layers underneath.QuoteThe true warriors here are the true patients. They're getting informed. They're getting help. They're moving on even.
The inconvenient truth is just too true.QuoteThis illness is caused by retroviruses.QuoteWe know it, we know it for sure.
All the hallmarks of.
All the footprints of.QuoteThree years, or less, or more, that's the common denominator.QuoteIf nobody helps patients deal with it then patients will look to those who will help them.
It's only natural.QuoteAnd the smart patients are getting smarter n smarter day by day.QuoteNot all fatiguing viral infection triggers lead to ME before/at/after 3years. yes you ll find cytokines n chemokines common to all. but that s all. And not surprising.Quotebut it isnt ME