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https://www.facebook.com/groups/1456868884565951/

"ME/CFS Australia (Victoria)
 
 
 For those of you keen to be involved, here's how the new clinic will work. There are some key dates in here to take note of, and the process for attending the clinic.
 "clinic.
 
 National Centre for Neuroimmunology and Emerging Diseases - NCNED

 Dear everyone,

 As you would know, we have been working extremely hard for 8 months to deliver a specialised CFS/ME clinic. The good ne...ws is the clinic has been launched!! YAY!
 
 CFS/ME patients will be able to contact reception after September 8th 2014 to organise a consultation. Further information can be found on our NCNED website for the clinic after September 8th 2014.

 Please note you will need a referral from a general practitioner or specialised clinician to make an appointment.
 
 If you have already provided your name to be on our waiting list prior to today, you will be contacted. If your name is not already on our waiting list, please contact reception on September 8th 2014.
 
 We know everyone is very excited and very eager about the clinic and we are too. Given we are running 4 large studies concurrently at the moment, September 8th has been chosen for you to make contact with reception as that will allow us time to finalise our projects. This will allow the NCNED team to focus on our research and then be available to patients at that time.
 
 Please be patient with us as there are only a limited number of us, we do understand.

 Best wishes,

 NCNED team
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Other health news / Re: FDA to regulate Lyme (borrelia) tests?
« Last post by Ess on Today at 06:21:59 AM »
from anciendaze

Quote
Does the FDA recommend consulting a psychic to know which test to run?

Psychic, or witch doctor or magician with magic wand to 'disappear'/dismiss Lyme disease.
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Advocacy News and Issues / Re: TWEETSTORM PROTEST
« Last post by Ess on Today at 05:30:20 AM »
Getting ready for Saturday's TWEET STORM Protest.

We've all got lots to say and important points to make!  The more voices--the louder the message.  8)

Rockin' Robin -- TWEET, TWEET, TWEET -- original by Bobby Day
http://www.youtube.com/watch?v=PcmvwFcfWmY

and also by The Jackson 5 --  TWEET, TWEET, TWEET
http://www.youtube.com/watch?v=C4VCUbL7jsc

Hope to see you there!!  SATURDAY  #StopP2P4ME
    :) :) 8)
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Advocacy News and Issues / Re: Brooke has Severe ME
« Last post by Jere on Yesterday at 11:30:10 PM »
Brooke has written a new post: One More Update.

www.documentingme.net
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General Discussion / Re: Documenting M.E.: One More Update, 7/31/2014
« Last post by Ess on Yesterday at 09:23:48 PM »
All of you are HERO's!!! Please everyone hang on.  There are things that although probably won't cure us, can help us.  I'm proof of that as I know I will probably never be cured, but I am doing very well. And I've also seen and know of promising results of others. Including some very severe ME patients.  The problem being the removal of access to treatment for us that should not have just been for one. All because of the continued greed to profit off us and the continued coverup of mistakes. How these people can live with themselves with watching the torture (and deaths) and ruining of lives of women, men and children is beyond me.
(my bolding)

Thank you, Robyn, to your beginning statements.

And to the latter--such GREED and DISmissal of human life is absolutely reprehensible and shameful.  There ought to be ZERO tolerance for this MALtreatment of people--instead of ONgoing conspiracy. 

This IS indeed TORTURE -- and DEATH -- utter DISregard for human life.
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General Discussion / Re: Documenting M.E.: One More Update, 7/31/2014
« Last post by Robyn on Yesterday at 09:14:33 PM »
All of you are HERO's!!! Please everyone hang on.  There are things that although probably won't cure us, can help us.  I'm proof of that as I know I will probably never be cured, but I am doing very well. And I've also seen and know of promising results of others. Including some very severe ME patients.  The problem being the removal of access to treatment for us that should not have just been for one. All because of the continued greed to profit off us and the continued coverup of mistakes. How these people can live with themselves with watching the torture (and deaths) and ruining of lives of women, men and children is beyond me. 
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General Discussion / Re: Documenting M.E.: One More Update, 7/31/2014
« Last post by AnneSpaceCoast on Yesterday at 08:41:50 PM »
Its a very emotional situation, its hard to comment.

I see this patient not being the only one, I see more :(

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General Discussion / Re: Documenting M.E.: One More Update, 7/31/2014
« Last post by Ess on Yesterday at 08:17:14 PM »

It sure is a very sad and tragic situation.  It is so verrrry verrrry WRONG!

Mmmmhmmmm--seems that instead of Public Health--we have Public Harm and Hazard.

There are many dedicated doctors--the system is right out of control--and on the wrong track for people/patients/citizens.

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Other health news / Re: Anti-oxidants ease Gulf War Syndrome, study finds
« Last post by Ess on Yesterday at 08:11:27 PM »
As part of my supplement regime for ME, I also take CO Q 10--and most recently in the form of Ubiquinol which is more easily absorbed by the body; and found the brand by Innovite Health which is gluten-free, etc. It was tricky to find a brand that is also SOY-free--now we have it!  I take 200 mg/day total----100 in the a.m. and the other 100 mg with dinner along other vitamin supplements.

I do think that CO Q 10 helps somewhat with the brain fog. I've been using CO Q 10 for about 6 years now. 

In this 2011 study Golomb referenced working with 46 vets.
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General Discussion / Re: Documenting M.E.: One More Update, 7/31/2014
« Last post by Robyn on Yesterday at 08:03:36 PM »
This is very sad and just so horrifying that this patient population is treated so horribly that this is happening.  It makes me so ANGRY that those who have covered up their nightmare can sit idly by and just watch as we die one by one.  There is no more Public Health.
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