Katrina Berne's CFS/FM Symptom Checklist - still one of my fav assessment tools

[Tango]

I actually have been tested for lupus. I seem to get acne like spots which follow the paths of the trigeminal nerves on my face, and other nerve paths along the back of my head and down my neck, and my gp was persuaded by this to do the test. It was negative.

I can't remember the name right now, Baby probably does.  Also associated with AIDS I think. 

[allyson]

I suppose you ruled out shingles peggy sue - as that follows the nervea pathways;

it's usually very painful though and episodic.

[peggy-sue]

I know how shingles works, and that it is very painful - which is why I did wonder a bit about a virus inhabiting nerves.
I ruled shingles out as there is no pain and the sopts are not sores.
I suspect it's rosacea.
Or not washing enough  - pillowslips get dirty, my hair gets dirty......

Sorry, I seem to have dragged us off-topic.

[allyson]

Hi Peggy-sue

does not sound like rosacea as that woud not go to back of head or back of neck I don't think - I have it

sticks to face neck and chest usually

yes we are way off topic now -  unless rosacea is another symptom - it is thought to be associated with leaky-gut syndrome

does anyone else have rosacea???

[Irisag]

http://www.wpinstitute.org/patient/docs/c1-berne.pdf




At one phase or another I have had nearly every symptom on the list to some degree.  The ME (cfs) plus FM complex has several studies showing the combination is synergistic and makes the degree of symptoms much worse that either disease alone.

[Irisag]

I just found Katrina Berne's CFS/FN symptom checklist on this forum and I couldn't be more grateful. My medical State disability appt is tomorrow and I was wondering how I was going to explain all of my symptoms to the doctor.  thanks for posting!

[Freewindsblowin]

Sometimes the salt cravings are related to the Endocrine issues of the under siege HPA axis-I spill electrolytes a lot, so have to keep up with the half and half H2O with gatorade/powerade what have you/electrolyte supplement.  Sometimes need some cortisol supplementing for further support to get everything propped up again.

Also dry mouth, so use the spray stuff to cut it down (the cravings) and that also helps reduce the hazards to my teeth getting too dried out without saliva to protect them.  Seems like the saliva production goes to heck, hence dry mouth, blah blah blah.......Too much liquids, lose too much salts, etc, get into this diuretic deal (shrug). Trouble then!. Too little, out of my mind.  Although maybe that happens anyways ;-[? .  Fine lines to walk...  Anyone have the dry mouth thing also?

[Karin]

Sometimes the salt cravings are related to the Endocrine issues of the under siege HPA axis-I spill electrolytes a lot, so have to keep up with the half and half H2O with gatorade/powerade what have you/electrolyte supplement.  Sometimes need some cortisol supplementing for further support to get everything propped up again.

Also dry mouth, so use the spray stuff to cut it down (the cravings) and that also helps reduce the hazards to my teeth getting too dried out without saliva to protect them.  Seems like the saliva production goes to heck, hence dry mouth, blah blah blah.......Too much liquids, lose too much salts, etc, get into this diuretic deal (shrug). Trouble then!. Too little, out of my mind.  Although maybe that happens anyways ;-[? .  Fine lines to walk...  Anyone have the dry mouth thing also?

I have just had an attack of dry mouth in the past three weeks, where my tongue feels like it's sticking to my palate and it's tough to speak and my voice cracks up. I also had an attack of burning and stinging on my tongue, mouth, throat and lips.

This seems to have helped a lot, it's much better since I started this Tuesday evening. maybe just placebo effect, but I am mentioning it: CDP choline (citicholine). This is a precursor to acetylcholine, and acetylcholine will bind to the cholinergic receptors responsible for producing saliva and tears. So I gave it a shot and got relief within two hours but no side effect. Could just be placebo though.

http://www.iherb.com/Jarrow-Formulas-Citicoline-CDP-Choline-250-mg-60-Capsules/112?at=0