Author Topic: Patient Treatment Survey Results  (Read 996 times)

jace

  • Hero Member
  • *****
  • Posts: 4090
  • Jane Clout
    • peoplewithME
Patient Treatment Survey Results
« on: February 10, 2011, 03:54:44 PM »
Some time I filled the the Cure together survey on treatments.  They've correlated the information now from 1300+ surveys, and published a graph with the data.  Interesting reading, and follows my experience.  You can see it online here http://curetogether.com/blog/wp-content/uploads/2011/02/CFS-infographic.png and if you want to take part, go here http://curetogether.com/
IinME  All it takes for evil to prevail is for good men to do nothing. MEactionUK

Tango

  • Hero Member
  • *****
  • Posts: 12222
  • Paprotka et al. 2011 is a bust!
Re: Patient Treatment Survey Results
« Reply #1 on: February 10, 2011, 06:11:23 PM »
CBT is not in there  :D
"I suspect there have been a number of conspiracies that never were described or leaked out. But I suspect none of the magnitude and sweep of Watergate." Woodward

"I would favor any name that does not impose (or give the appearance of imposing) taxonomic preconceptions on the nomenclature." Coffin

FunkOdyssey

  • Full Member
  • ***
  • Posts: 211
Re: Patient Treatment Survey Results
« Reply #2 on: February 10, 2011, 06:49:50 PM »
I'm surprised at how highly adderall is ranked, which always struck me as something that would improve short-term function at the expense of long-term decline.  I wonder if people are really finding that their health improves over the long-term with it.  I'm still skeptical, between amphetamine directly enhancing retroviral replication and indirect effects like disruption of sleep.

And I guess it's time to start meditating again.  I never seem to stick to a meditation practice longer than a week or two.

JT1024

  • Hero Member
  • *****
  • Posts: 1851
Re: Patient Treatment Survey Results
« Reply #3 on: February 10, 2011, 06:52:25 PM »
What is "EFT"?
First they Ignore you , then they Laugh at you , then they Attack you , then you WIN!!!

Mahatma Gandhi

Patricia

  • Administrator
  • Hero Member
  • *****
  • Posts: 16556
Re: Patient Treatment Survey Results
« Reply #4 on: February 10, 2011, 08:47:01 PM »
EFT is "Emotional Freedom Techniques"

http://www.emofree.com/
A person's actions tell you all you need to know.

gracenote

  • Hero Member
  • *****
  • Posts: 1584
Re: Patient Treatment Survey Results
« Reply #5 on: February 10, 2011, 10:44:43 PM »
The claims made for EFT are quite (unbelievably) extraordinary.

At least you can download the whole program notes and videos for free and learn to do them yourself. (Takes out some of the profit angle, although to really "do it right" you might need a good practitioner!) But still, it's available for free, and some patients think it helps them with their symptoms and coping.
You need to first decide this is a disease worth studying.
— Harvey Alter

jace

  • Hero Member
  • *****
  • Posts: 4090
  • Jane Clout
    • peoplewithME
Re: Patient Treatment Survey Results
« Reply #6 on: February 11, 2011, 07:02:43 AM »
To see the stats in detail (there is also a page on symptoms and one on causes) you have to join and go here http://curetogether.com/chronic-fatigue-syndrome/treatments/
It's interesting...
IinME  All it takes for evil to prevail is for good men to do nothing. MEactionUK

garcia

  • Hero Member
  • *****
  • Posts: 1065
  • I love to count!
    • GcMaffed
Re: Patient Treatment Survey Results
« Reply #7 on: February 11, 2011, 11:02:26 AM »
Garbage-in, Garbage-out as they say in computing.
"Not everything that counts can be counted, and not everything that can be counted counts." Albert Einstein
GcMaffed

Flopsy

  • Hero Member
  • *****
  • Posts: 1007
Re: Patient Treatment Survey Results
« Reply #8 on: February 11, 2011, 02:00:30 PM »
We have the EFT pushed quite hard at patients in the UK. A leader of a local support group trained in the proceedure and started selling it.

Not sure if she is involved with ME activities any longer or claims to have the disease now. She was at one of the invest in ME conferences with some supporters.

http://www.eftdevon.co.uk/index.php

Inge

  • Sr. Member
  • ****
  • Posts: 337
Re: Patient Treatment Survey Results
« Reply #9 on: February 11, 2011, 06:51:58 PM »
I tried it for insomnia (was desperate) and it kept me awake