Author Topic: Treatment survey - results for Prescription treatments  (Read 3325 times)

since

  • Administrator
  • Hero Member
  • *****
  • Posts: 1260
Treatment survey - results for Prescription treatments
« on: August 08, 2012, 07:26:24 PM »
Last fall Wildaisy created a series of treatment surveys in which she asked patients to report how they fared on various treatments. Patients could rate a treatment as having a positive effect, no effect, or a negative effect. They could also report that a particular treatment had intolerable side effects.

I volunteered to help analyze the data. Below is the results for the "prescription treatments" part of the survey (there are three other parts yet to be analyzed). The percentage of patients who took each treatment and reported positive, negative, or intolerability is reported, along with a text "pictogram" graph. Each symbol represents one patient response. The length of the pictogram shows how many patients reported trying that treatment. A red minus sign represents a negative response, the letter o represent no effect (red if intolerable side effects reported), and the plus sign represents positive effect (again, red if intolerable side effects reported).

The results are sorted with the highest positive response (by percentage rate) at the top. So you can start at the bottom of the list to find the least successful treatments.

Treatments with five or fewer responses are excluded from the list below. P-values have not been calculated.

There were 125 responses to the survey.

If you have trouble viewing the information below (text garbled, horizontal scrolling, font size issues, etc.), you can also view the results here.


LEGEND...
 Pos: percentage of treatment users reporting positive effect
 Neg: percentage of treatment users reporting negative effect
 ISE: percentage of treatment users reporting intolerable side effects
  - : user reporting negative effect, regardless of side effects
  o : user reporting no effect, but with intolerable side effects
  o : user reporting no effect
  + : user reporting positive effect, but with intolerable side effects
  + : user reporting positive effect

DATA...
 Percocet                          92.86% Pos   7.14% Neg  21.43% ISE   -+++++++++++++
 Tinidazole (Tindamax)             91.67% Pos   0.00% Neg   0.00% ISE   o+++++++++++
 Cytomel                           90.00% Pos  10.00% Neg   0.00% ISE   -+++++++++
 Oxycodone (Oxycontin)             88.89% Pos  11.11% Neg  33.33% ISE   -++++++++
 Clonazepam (Klonopin, Rivotril)   88.57% Pos   5.71% Neg   2.86% ISE   --oo+++++++++++++++++++++++++++++++
 Human Growth Hormone              87.50% Pos  12.50% Neg   0.00% ISE   -+++++++
 Topiramate (Topamax)              87.50% Pos  12.50% Neg   0.00% ISE   -+++++++
 Lorazapam (Ativan)                87.50% Pos   0.00% Neg  18.75% ISE   oo++++++++++++++
 Ketaconazole (Nizoral)            87.50% Pos   0.00% Neg   0.00% ISE   o+++++++
 Olmesartan (Benicar)              85.71% Pos  14.29% Neg  14.29% ISE   -++++++
 GcMAF                             83.33% Pos  16.67% Neg   0.00% ISE   -+++++
 Nexavir                           80.00% Pos   0.00% Neg   0.00% ISE   oo++++++++
 Hydrocodone-Acetaminophen (Vicodi 78.26% Pos  13.04% Neg  17.39% ISE   ---oo++++++++++++++++++
 Intravenous saline                76.00% Pos   4.00% Neg   0.00% ISE   -ooooo+++++++++++++++++++
 Baclofen                          75.00% Pos   6.25% Neg  12.50% ISE   -ooo++++++++++++
 Medical marijuana                 72.22% Pos  33.33% Neg  11.11% ISE   ------+++++++++++++
 Alprazolam (Xanax)                72.00% Pos  16.00% Neg  12.00% ISE   ----ooo++++++++++++++++++
 Fentanyl Transdermal Patch        71.43% Pos  28.57% Neg  28.57% ISE   --+++++
 Zolpidem (Ambien)                 70.00% Pos  20.00% Neg  26.67% ISE   ------ooooo+++++++++++++++++++++
 Acyclovir                         67.86% Pos  10.71% Neg   7.14% ISE   ---oooooo+++++++++++++++++++
 Famciclovir (Famvir)              66.67% Pos  11.11% Neg   0.00% ISE   -ooo++++++
 Tramadol (Ultram)                 66.67% Pos  12.50% Neg  20.83% ISE   ---ooooo++++++++++++++++
 Propoxyphene-Acetaminophen (Darvo 66.67% Pos  16.67% Neg  16.67% ISE   -o++++
 Doxycycline                       66.00% Pos  12.00% Neg   8.00% ISE   ------oooooooooooo+++++++++++++++++++++++++++++++++
 Diazepam (Valium)                 64.71% Pos  17.65% Neg  17.65% ISE   ------oooooo++++++++++++++++++++++
 Azithromycin (Zithromax)          64.10% Pos  10.26% Neg   2.56% ISE   ----oooooooooo+++++++++++++++++++++++++
 Valacyclovir (Valtrex)            64.00% Pos   8.00% Neg   8.00% ISE   --ooooooo++++++++++++++++
 Lidocaine Transdermal             62.50% Pos   6.25% Neg   0.00% ISE   -ooooo++++++++++
 Demerol                           62.50% Pos   0.00% Neg   0.00% ISE   ooo+++++
 Naproxen prescription             62.50% Pos  12.50% Neg  37.50% ISE   --oooo++++++++++
 Fluconazole (Diflucan)            60.98% Pos  14.63% Neg   4.88% ISE   ------ooooooooooo+++++++++++++++++++++++++
 Morphine Sulphate                 60.00% Pos  20.00% Neg  26.67% ISE   ---ooo+++++++++
 Hydrocortisone (Cortef)           60.00% Pos  24.00% Neg   8.00% ISE   ------oooo+++++++++++++++
 Cyclobenzaprine (Flexeril)        59.09% Pos  18.18% Neg  13.64% ISE   ----ooooo+++++++++++++
 Oxygen Therapy                    58.33% Pos   0.00% Neg   0.00% ISE   ooooo+++++++
 Hydroxychloroquine (Plaquenil)    58.33% Pos   8.33% Neg  16.67% ISE   -oooo+++++++
 Escitaprolam (Lexapro)            58.33% Pos  33.33% Neg  33.33% ISE   ----o+++++++
 Levothyroxin (Synthroid)          57.69% Pos  11.54% Neg   7.69% ISE   ---ooooooooo+++++++++++++++
 Ibuprofen prescription            57.14% Pos   9.52% Neg   9.52% ISE   ----oooooooooooooo++++++++++++++++++++++++
 Metaxalone (Skelaxin)             57.14% Pos  14.29% Neg  14.29% ISE   -oo++++
 Lamotrigine (Lamictal)            57.14% Pos  14.29% Neg   0.00% ISE   -oo++++
 Valganciclovir (Valcyte)          55.56% Pos  22.22% Neg  11.11% ISE   --oo+++++
 Vitamin B12 injection             54.84% Pos   4.84% Neg   4.84% ISE   ---oooooooooooooooooooooooooo++++++++++++++++++++++++++++++++++
 Vitamin B12 prescription          54.84% Pos   0.00% Neg   0.00% ISE   oooooooooooooo+++++++++++++++++
 Amphetamine-Dextroamphetamine (Ad 52.38% Pos  38.10% Neg  19.05% ISE   --------oo+++++++++++
 Thyroid hormone-T3 T4 (Bio-identi 52.00% Pos  16.00% Neg   8.00% ISE   ----oooooooo+++++++++++++
 Intravenous Immunoglobulin IVIg   50.00% Pos  16.67% Neg  16.67% ISE   -oo+++
 Cimetidine (Tagamet)              50.00% Pos   7.14% Neg   0.00% ISE   -oooooo+++++++
 Naltrexone (Low Dose Naltrexone)  50.00% Pos  20.00% Neg  10.00% ISE   --------oooooooooooo++++++++++++++++++++
 Oxazepam (Serax)                  50.00% Pos  16.67% Neg   0.00% ISE   -oo+++
 Tetracycline                      50.00% Pos  13.64% Neg  13.64% ISE   ---oooooooo+++++++++++
 Cholestyramine (Questran)         50.00% Pos  20.00% Neg   0.00% ISE   --oooo+++++
 Fludrocortisone (Florinef)        50.00% Pos  20.83% Neg  20.83% ISE   -----ooooooooo++++++++++++
 Myer’s Cocktail IV (nutrient mi 50.00% Pos   5.56% Neg   5.56% ISE   -oooooooo+++++++++
 Vitamin D Prescription (Rocaltrol 48.28% Pos  13.79% Neg   3.45% ISE   ----oooooooooooo++++++++++++++
 Minocycline (Minoclin)            47.37% Pos  10.53% Neg   5.26% ISE   --oooooooo+++++++++
 Propanolol (Inderal)              47.06% Pos  11.76% Neg  23.53% ISE   --ooooooo++++++++
 Temazepam (Plaquenil)             46.15% Pos  30.77% Neg  30.77% ISE   ----ooo++++++
 Prilosec (omeprazole)             46.15% Pos   0.00% Neg   0.00% ISE   ooooooo++++++
 Imitrex (Sumatriptan)             45.45% Pos  18.18% Neg  36.36% ISE   --oooo+++++
 Thyroid Extract (Armour Thyroid,  45.16% Pos  25.81% Neg  12.90% ISE   --------ooooooooo++++++++++++++
 Amantadine (Symmetrel)            44.44% Pos  11.11% Neg  22.22% ISE   -oooo++++
 Nystatin                          44.12% Pos  11.76% Neg   8.82% ISE   ----ooooooooooooooo+++++++++++++++
 Doxepin (Sinequan)                43.48% Pos  26.09% Neg   8.70% ISE   ------ooooooo++++++++++
 Ciprofloxacin (Cipro)             43.48% Pos   8.70% Neg  13.04% ISE   --ooooooooooo++++++++++
 Eszopiclone (Lunesta)             42.86% Pos  14.29% Neg   7.14% ISE   --oooooo++++++
 Gabapentin (Neurontin)            42.86% Pos  34.29% Neg  22.86% ISE   ------------oooooooo+++++++++++++++
 Omeprazole (Prilosec)             42.86% Pos  14.29% Neg   0.00% ISE   ---ooooooooo+++++++++
 Celecoxib (Celebrex)              41.67% Pos  41.67% Neg  25.00% ISE   -----oo+++++
 Immunovir (Isoprinosine)          41.18% Pos  11.76% Neg  17.65% ISE   --oooooooo+++++++
 Citaprolam (Celexa)               40.00% Pos  50.00% Neg  20.00% ISE   -----o++++
 Hepapressin injection (Kutapressi 40.00% Pos  10.00% Neg  10.00% ISE   -ooooo++++
 Acetominophen prescription (Tylen 39.34% Pos   3.28% Neg   8.20% ISE   --ooooooooooooooooooooooooooooooooooo++++++++++++++++++++++++
 Penicillin                        36.36% Pos  18.18% Neg  12.12% ISE   ------ooooooooooooooo++++++++++++
 Glutathione                       36.11% Pos  13.89% Neg   2.78% ISE   -----ooooooooooooooooooo+++++++++++++
 Methylphenidate (Ritalin)         35.29% Pos  47.06% Neg  17.65% ISE   --------ooo++++++
 Cortisone                         34.48% Pos  31.03% Neg   3.45% ISE   ---------oooooooooo++++++++++
 Prednisolone                      33.33% Pos  22.22% Neg   0.00% ISE   --oooo+++
 Citopam (citalopram)              33.33% Pos  33.33% Neg  33.33% ISE   ---ooo+++
 Bupropion (Wellbutrin)            31.03% Pos  34.48% Neg  20.69% ISE   ----------oooooooooo+++++++++
 Vitamin C IV                      30.43% Pos   8.70% Neg   4.35% ISE   --oooooooooooooo+++++++
 Cortisone injection               28.57% Pos  35.71% Neg   7.14% ISE   -----ooooo++++
 Prednisone                        27.27% Pos  31.82% Neg  22.73% ISE   -------ooooooooo++++++
 Trazadone (Desyrel)               26.67% Pos  46.67% Neg  20.00% ISE   -------ooooo++++
 Amitriptyline (Elavil)            21.05% Pos  50.00% Neg  39.47% ISE   -------------------ooooooooooo++++++++
 Modafinil (Provigil)              20.83% Pos  66.67% Neg   8.33% ISE   ----------------oooo+++++
 Fluoxetine (Prozac)               20.59% Pos  35.29% Neg  23.53% ISE   ------------ooooooooooooooo+++++++
 Venlafaxine (Effexor)             19.05% Pos  61.90% Neg  52.38% ISE   -------------oooo++++
 Pregablin (Lyrica)                16.67% Pos  55.56% Neg  33.33% ISE   ----------oooooo+++
 Influenza vaccine (flu shot)      13.16% Pos  42.11% Neg  10.53% ISE   ----------------ooooooooooooooooo+++++
 Quetiapine (Seroquel)             12.50% Pos  62.50% Neg  37.50% ISE   -----oo+
 Sertraline (Zoloft)               11.54% Pos  57.69% Neg  34.62% ISE   ---------------oooooooo+++
 Paroxetine (Paxil)                10.53% Pos  47.37% Neg  36.84% ISE   ---------oooooooo++
 Armodafinil (Nuvigil)              0.00% Pos  66.67% Neg   0.00% ISE   ----oo
« Last Edit: August 08, 2012, 07:31:58 PM by since »
Quality over quantity.

Sp!ndrift

  • Sr. Member
  • ****
  • Posts: 451
  • Intelligent Sexy Dangerous
Re: Treatment survey - results for Prescription treatments
« Reply #1 on: August 08, 2012, 07:58:11 PM »


Since, have I told you lately that I love you? Thanks for doing that!

 :-\  Kinda shows what we already knew, different things help different people and we have yet to find the cure all.
Eddie would go

Karin

  • Hero Member
  • *****
  • Posts: 991
Re: Treatment survey - results for Prescription treatments
« Reply #2 on: August 08, 2012, 08:10:36 PM »
Excellent, thank you so much!  :)

since

  • Administrator
  • Hero Member
  • *****
  • Posts: 1260
Re: Treatment survey - results for Prescription treatments
« Reply #3 on: August 08, 2012, 10:55:53 PM »
It is interesting to me that several antivirals and antibiotics seem to be clustered together, all with about 2/3 reporting a positive effect. Obviously an antibiotic is quite different from an antiviral yet they seem to have similar patient responses.

It appears from the survey that azithromycin is as effective as doxycycline but with fewer side effects. Likewise, famciclovir seems to be marginally better tolerated than valacyclovir (Valtrex), which is in turn better tolerated than Valcyte.

Of note is that Lyrica is pretty close to the bottom of the list. The negative response rate for Lyrica is even higher than for Prozac (which is also towards the bottom).
Quality over quantity.

Robyn

  • Hero Member
  • *****
  • Posts: 4800
Re: Treatment survey - results for Prescription treatments
« Reply #4 on: August 08, 2012, 11:21:36 PM »
Thank you Since this is great.  And thank you Wildaisy too.

Patricia

  • Administrator
  • Hero Member
  • *****
  • Posts: 17066
Re: Treatment survey - results for Prescription treatments
« Reply #5 on: August 09, 2012, 12:00:57 AM »
Thank you for this analysis, Since.  I really appreciate you doing this.
Never be bullied into silence; speak your truth even when your voice shakes.

Sp!ndrift

  • Sr. Member
  • ****
  • Posts: 451
  • Intelligent Sexy Dangerous
Re: Treatment survey - results for Prescription treatments
« Reply #6 on: August 09, 2012, 01:16:19 AM »
It is interesting to me that several antivirals and antibiotics seem to be clustered together, all with about 2/3 reporting a positive effect. Obviously an antibiotic is quite different from an antiviral yet they seem to have similar patient responses.

Our whacked immune sys  :(

Just shows we have all kinds of bacterial, viral and who knows what other infection. What works for whom on the anti-viral and antibacterial meds prob depends on which infections we have and if the meds we are taking target those specific infections. Ideally, we get tested for every possible infectious agent (including those not discovered yet ;) ) and get a targeted treatment for each.

I am refraining from speculating on any possible effects the meds may have on possible retroviruses for now; too many unknown variables there at this time.
^ He he, wisdom acquired by a good mathematics education.

BTW I did not do the survey, but am improving greatly (mostly cognitive though) on high-dose acyclovir (3x 800 mg/day) with no immediate side-effects.
I am infested with HSV1, HSV2, Coxsackie B type 2, type 3, type 4, Echovirus 9.
No HHV6 and CMV though.

« Last Edit: August 09, 2012, 01:24:52 AM by Sp!ndrift »
Eddie would go

liquid sky

  • Hero Member
  • *****
  • Posts: 1333
Re: Treatment survey - results for Prescription treatments
« Reply #7 on: August 09, 2012, 01:53:46 AM »
Interesting too that anti-depressants are mostly at the bottom of the list. Thanks Since for the analysis and Wildaisy for the survey.   :)

Glad you're seeing cognitive improvement with acyclovir with no side effects, Spindrift.  :)

Firestormm

  • Hero Member
  • *****
  • Posts: 666
Re: Treatment survey - results for Prescription treatments
« Reply #8 on: August 09, 2012, 11:54:23 AM »
Thanks Since.

I didn't take part in this but might I ask, presumably not all 125 patients had experience of all the drugs mentioned, so what effect does this have on the percentages?

If this isn't relevant that just tell me I am being dumb. It's been a long day and I need me bed.  :)

subtr4ct

  • Hero Member
  • *****
  • Posts: 944
  • Just came to freak you out, baby
Re: Treatment survey - results for Prescription treatments
« Reply #9 on: August 09, 2012, 01:37:34 PM »
Thanks very much Wilddaisy and Since.  This kind of information that can guide practical response is incredibly helpful

ETA: Can people still take the survey and will further results be processed, or is this project concluded?
Disclaimer: I am not a medical doctor.  This post is not medical advice.  Consult your physician before taking any action.

Levi

  • Moderator
  • Hero Member
  • *****
  • Posts: 603
Re: Treatment survey - results for Prescription treatments
« Reply #10 on: August 09, 2012, 05:23:24 PM »
Human Growth Hormone?

since

  • Administrator
  • Hero Member
  • *****
  • Posts: 1260
Re: Treatment survey - results for Prescription treatments
« Reply #11 on: August 09, 2012, 05:28:58 PM »
Can people still take the survey and will further results be processed, or is this project concluded?

People can no longer take the survey, but more results will be posted in the coming weeks.
Quality over quantity.

Sp!ndrift

  • Sr. Member
  • ****
  • Posts: 451
  • Intelligent Sexy Dangerous
Re: Treatment survey - results for Prescription treatments
« Reply #12 on: August 09, 2012, 08:35:29 PM »
Thanks Since.

I didn't take part in this but might I ask, presumably not all 125 patients had experience of all the drugs mentioned, so what effect does this have on the percentages?

If this isn't relevant that just tell me I am being dumb. It's been a long day and I need me bed.  :)


The percentages are based only on the people who actually took the specific medication and Since excluded medications that had less than 5 people taking them, so the results have more relevance.  Am I making sense?

Example: Immunovir

17 people took Immunovir

2 people reported negative effect (indicated by the - ) = 11.76% of those 17 people
8 people reported no effect (indicated by the o )
7 people reported positive effect indicated by the +) = 41.18% of those 17 people

If people reported intolerable side-effects (ISE), it is indicated in red.
With Immunovir 4 of 17 people reported intolerable side-effects = 17.65%

I am sure this looks better after a good nights sleep  :)
Eddie would go

Patricia

  • Administrator
  • Hero Member
  • *****
  • Posts: 17066
Re: Treatment survey - results for Prescription treatments
« Reply #13 on: August 11, 2012, 02:06:03 PM »
I am surprised to see low dose naltrexone with only 50 percent positive results.  It seems like everything I read about it is positive.
Never be bullied into silence; speak your truth even when your voice shakes.

liquid sky

  • Hero Member
  • *****
  • Posts: 1333
Re: Treatment survey - results for Prescription treatments
« Reply #14 on: August 11, 2012, 07:44:04 PM »
Temazepam is Restoril, a sleeping pill.