Author Topic: BBC documentary about Mickel Therapy for ME/CFS  (Read 2110 times)

Belle

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Re: BBC documentary about Mickel Therapy for ME/CFS
« Reply #60 on: January 31, 2012, 10:49:33 AM »
I think the people who took part in the programme had courage doing it. It must have been difficult to talk about on TV.

But after watching the second part, it left me with a sinking feeling..  It was predominently about Mikel Therapy and seemed outdated. I would have liked to have seen discussion about more recent biological research and although muscle abnormalty after exercise research was mentioned, not enough time in the program was given to it.


Cytokine

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Re: BBC documentary about Mickel Therapy for ME/CFS
« Reply #61 on: January 31, 2012, 04:18:08 PM »
Wasn't as good as the first one. Bit too much about Mickel therapy.

I wasn't entirely convinced the nurse was really any better. It was interesting that she said after the first time she tried it, when she started back to work she was ready to colapse after 2 hours. It suggests there's an element of convincing yourself you're better when you're not, to it, along the lines of CBT. And when the reality of real work and effort came to bare, that illusion was shattered and it all came crashing down.

As for what I heard of the therapy itself, it sounded like a mix of unproven psuedo-science about hidden emotions and wooly self help speak. "Make more quality time for yourself". I'm sure I really bury my emotions. I have a good strop or two.  ;D

I'm sure what Kim was trying to say. He seemed to be suggesting the therapy helped him cope better with the disease, more than put him on the road to recovery. I didn't like how they interspersed what Kim was saying and what Mickel was saying, who was much less vague about how he thought Kim was much better. It seemed to be almost putting extra words in Kim's mouth. Kim was much more vague about actual improvements.

I worry about the psychology of this situation. They have this doctor coming to see them, spending time with them, they're getting the treatment for free, paid for by the programme. You wonder if they feel obliged to sound more positive because they don't want to make the Dr look bad.

I thought neurologist was good. Made some interesting input to the show and pretty much said talking therapies weren't really going to cure anyone.

Nothing on XMRV, nothing on Rituximab, too much Mickel.

You know what though, if Dr Mickel is so confident in his treatment, I'll take 8 sessions for free over Skype. If I think I'm on the road to recovery after those sessions and it's changed my life, I'll give him £500 for his efforts, even if it takes a getting a loan off someone. Deal?....
« Last Edit: January 31, 2012, 04:23:36 PM by Cytokine »
In Mikovits, Ruscetti and Lipkin I trust.

Belief in the "false illness belief" is religion, not science. Where is your proof? Where is your cure?

Cytokine

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Re: BBC documentary about Mickel Therapy for ME/CFS
« Reply #62 on: February 17, 2012, 03:04:03 AM »
No, I didn't think that (admittedly slightly flippant) offer would get taken up in a hurry ;D. I figure Mickel or one of his disciples must have browsed this thread at sometime to see what was being said about the therapy, which is why I made the offer, so I guess they can't be that confident in its results?

But if you think about it, if he claims about a 70-80% success rate (I think that was about the figure without going through it again), and there are claims of vast improvements with some after 1 or  sessions, why doesn't he offer, say, 3 or 4 free therapies, then the patient then has the option to pay for those therapies and pay for the final 3 or 4 to complete the treatment? If the patient is getting great results and recovery, what patient wouldn't take up the offer to complete the course, even if it did cost them alot of £££s? How could he lose? He couldn't, unless his figures aren't as good as he claims.

I'm very sceptical about his therapy, but I'd take that offer, as I'm still open minded enough to try it. And any therapy worth it's salt would work whether the patient is sceptical or not, right?
In Mikovits, Ruscetti and Lipkin I trust.

Belief in the "false illness belief" is religion, not science. Where is your proof? Where is your cure?

awol

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Re: BBC documentary about Mickel Therapy for ME/CFS
« Reply #63 on: February 17, 2012, 06:53:39 AM »
any therapy worth it's salt would work whether the patient is sceptical or not, right?

agreed.  ;)

Wildaisy

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Re: BBC documentary about Mickel Therapy for ME/CFS
« Reply #64 on: February 22, 2012, 05:32:31 PM »
Firestormm has generously provided the forum with transcripts of these videos, and they are now posted in the Forum Wiki:

Part 1:  http://www.mecfsforums.com/wiki/M.E.:_The_Toxic_Tiredness,_Part_1,_January_23,_2012

 Part 2:  http://www.mecfsforums.com/wiki/M.E.:_The_Toxic_Tiredness,_Part_2,_January_30,_2012
 
 
"Many people, especially ignorant people, want to punish you for speaking the truth, for being correct, for being you. ... If you're right and you know it, speak your mind.  Even if you are a minority of one, the truth is still the truth."  ~ Ghandi