SUPPORT THUNDERCLAP: Stop the IOM! Adopt the CCC! https://www.thunderclap.it/projects/10666-stop-the-iom-adopt-the-cccME/CFS Demonstration in San Francisco on May 12, 2014! http://www.mecfsforums.com/index.php/topic,19869.msg160980.html#new
This is a blog about her first visit to Dr. Kogelnik.http://bikechick06.blogspot.com/2012/01/visit-at-dr-kogelniks-office.html"So far he is getting the same results as the Norwegian study and he is in contact with dr Fluge and Mella once every 2 weeks. he is expecting that clinical trials will happen within a year."
Personally, I would never do this due to the small but fatal risk of PML.
It is remarkable that despite the risks Rituximab was considered safe enough to launch multiple clinical trials based ultimately on a single report of improvements in a CFS patient during an RA study, while ARVs have been deemed "unsafe" and "too toxic" for use in CFS by a loud chorus of pundits (most of whom appear to have no clinical experience with ARVs or CFS..)
Maybe an autoimmune answer is more "acceptable" to some than a retroviral one? Certainly, a lot less liability involved.
Your right. It Doesn't make any sense.I am wondering if it will lead to a round about path to accepting/discovering a retrovirus in ME patients. It begs the question of why does depleting B cells help many of us. I'm sure this will be a logical step of study going forward.If the medical establishment can't accept direct evidence all at once can they digest it better in slower steps?This is great progress. At least if it holds up and expands it can shut up the Psyche crap.
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